Mothers’ reactions to their child’s ASD diagnosis: Predictors that discriminate grief from distress

We examined whether grief and general distress reactions characterized mothers’ reactions to their child’s ASD diagnosis, and whether these two types of reactions had unique predictors. Hierarchical regression analyses were conducted on data collected from 362 mothers recruited from the Interactive Autism Network (IAN). The mothers were predominantly white, highly educated, and married. Grief reactions were positively associated with perceiving ASD as a loss and as unjust. Distress was positively associated with previous mental health issues, mothers’ reports of their child’s aggressive behavior, identity ambiguity, and less social support. Internal attributions were positively related to grief and distress. Discussion focuses on why the distinction between these two types of affective reactions may be useful for parents and professionals

AUT763971_Lay_Abstract – Supplemental material for Challenged and changed: Quiet ego and posttraumatic growth in mothers raising children with autism spectrum disorder

<p>Supplemental material, AUT763971_Lay_Abstract for Challenged and changed: Quiet ego and posttraumatic growth in mothers raising children with autism spectrum disorder by Heidi A Wayment, Rosemary Al-Kire and Kristina Brookshire in Autism</p

AUT763971_Supplementary_Material – Supplemental material for Challenged and changed: Quiet ego and posttraumatic growth in mothers raising children with autism spectrum disorder

<p>Supplemental material, AUT763971_Supplementary_Material for Challenged and changed: Quiet ego and posttraumatic growth in mothers raising children with autism spectrum disorder by Heidi A Wayment, Rosemary Al-Kire and Kristina Brookshire in Autism</p

Health information technology utilization by adolescent and young adult aged inpatients undergoing hematopoietic cell transplantation

This longitudinal study examined feasibility of “Roadmap 1.0,” a modular health information application integrated with the electronic medical record, provided to 30 adolescent and young adult (AYA) inpatients 11–24 years of age undergoing hematopoietic stem cell transplantation (HSCT). Feasibility was demonstrated: 70% accessed the application. Utilization was highest the first 2 weeks of hospitalization, with the laboratory results module used most. Users' tension and fatigue were higher than nonusers' at baseline, but not hospital discharge or day 100. Results suggest AYAs utilize health information technology in ways consistent with the HSCT trajectory and Roadmap 1.0 addressed informational and psychological needs