The Lived Experiences of Formal Caregivers in Communicating with Persons Living with Dementia in Their Own Homes

There is limited literature focused on formal caregivers’ communication with persons living with dementia (PLWD) in home settings. Yet, there is an expected need and demand for formal caregiver support within home care. Thus, the aim of this hermeneutic phenomenological study was to understand better the lived experiences of personal support workers (PSWs) during their communication with PLWD in home environments. Three major themes were identified through thematic analysis of semi-structured interviews (N=15): (1) challenged by dementia-related impairments; (2) valuing communication in care; and (3) home is a personal space. Findings reveal that PSWs experience difficulties communicating with PLWD, despite recognizing the importance of communication in providing optimal care. The findings suggest that while PSWs possess good intentions, they do not possess the skills necessary to ensure effective interactions. Findings have implications for optimizing practice and enhancing quality of care

A scoping assessment of dental services at designated head and neck cancer centres in Ontario, Canada

Abstract Background Dentists serve a crucial role in managing treatment complications for patients with head and neck cancer, including post-radiation caries and oral infection. To date, dental services for head and neck cancer patients in Ontario, Canada have not been well characterized and considerable disparities in allocation, availability, and funding are thought to exist. The current study aims to describe and assess the provision of dental services for head and neck cancer patients in Ontario. Methods A mixed methods scoping assessment was conducted. A purposive sample of dentist-in-chiefs at each of Ontario’s 9 designated head and neck cancer centres (tertiary centres which meet provincially-set quality and safety standards) was invited to participate. Participants completed a 36-item online survey and 60-minute semi-structured interview which explored perceptions of dental services for head and neck cancer patients at their respective centres, including strengths, gaps, and inequities. If a centre did not have a dentist-in-chief, an alternative stakeholder who was knowledgeable on that centre’s dental services participated instead. Thematic analysis of the interview data was completed using a mixed deductive-inductive approach. Results Survey questionnaires were completed at 7 of 9 designated centres. A publicly funded dental clinic was present at 5 centres, but only 2 centres provided automatic dental assessment for all patients. Survey data from 2 centres were not captured due to these centres’ lack of active dental services. Qualitative interviews were conducted at 9 of 9 designated centres and elicited 3 themes: (1) lack of financial resources; (2) heterogeneity in dentistry care provision; and (3) gaps in the continuity of care. Participants noted concerning under-resourcing and limitations/restrictions in funding for dental services across Ontario, resulting in worse health outcomes for vulnerable patients. Extensive advocacy efforts by champions of dental services who have sought to mitigate current disparities in dentistry care were also described. Conclusions Inequities exist in the provision of dental services for head and neck cancer patients in Ontario. Data from the current study will broaden the foundation for evidence-based decision-making on the allocation and funding of dental services by government health care agencies