The Lived Experiences of Formal Caregivers in Communicating with Persons Living with Dementia in Their Own Homes

Abstract

There is limited literature focused on formal caregivers’ communication with persons living with dementia (PLWD) in home settings. Yet, there is an expected need and demand for formal caregiver support within home care. Thus, the aim of this hermeneutic phenomenological study was to understand better the lived experiences of personal support workers (PSWs) during their communication with PLWD in home environments. Three major themes were identified through thematic analysis of semi-structured interviews (N=15): (1) challenged by dementia-related impairments; (2) valuing communication in care; and (3) home is a personal space. Findings reveal that PSWs experience difficulties communicating with PLWD, despite recognizing the importance of communication in providing optimal care. The findings suggest that while PSWs possess good intentions, they do not possess the skills necessary to ensure effective interactions. Findings have implications for optimizing practice and enhancing quality of care

    Similar works