4 research outputs found

    Accompanied child irregular migrants who arrive to Spain in small boats: experiences and health needs

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    The European Union is the preferred destination of child irregular migrants arrived from northern Africa, who risk their lives crossing the Mediterranean Sea in small boats. Accompanied Child Irregular Migrants (AChIMs) are exposed to physical and psychological risk. The objective of our study is to describe and understand the experiences and health needs of AChIMs who arrive to Spain in small boats, through the testimony of adults who accompany them on the journey. A qualitative study, based on Gadamer's hermeneutic phenomenology, was performed. After obtaining approval from the Ethics and Research Committee, we conducted in-depth interviews on 32 adults who travelled with AChIMs. Two main themes emerged: (1) The journey a child should never have to take, with the subthemes 'AChIMs as a paradigm of vulnerability' and 'Crossing the sea, playing with death' and (2) Characterising emergency care to AChIMs, with the subthemes 'Prioritising specific care', 'Identifying high-risk situations' and 'The detaining of innocent children'. AChIMs, along with adults, risk their lives in such a dangerous and perilous journey, therefore, finding out about their experiences may contribute to improving the treatment of their specific health needs during the phases of rescue and emergency care

    The diagnosis of hereditary angioedema: family caregivers’ experiences

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    The aim of this study was to understand the experiences of family caregivers in the process of diagnosing hereditary angioedema. An interpretive and qualitative research methodology based on Gadamer’s philosophical hermeneutics was carried out. Data collection took place between May 2015 and August 2016 and included a focus group and in-depth interviews with 16 family caregivers. Two themes define the experiences of family caregivers: “Family life focuses on identifying the problem” and “Discovering and coping with a complex diagnosis.” The process of diagnosis generates fear, anxiety, uncertainty, and incomprehension. Family caregivers are the main support for patients diagnosed with hereditary angioedema. As they share in the patients’ suffering, they need a diagnosis to be established to be able to cope with the disease and offer support. Family health nurses can contribute to improving the coping process in this phase of the disease

    Experiences of mothers of extremely preterm infants after hospital discharge

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    The purpose of this study was to describe and understand the experiences of mothers of extremely preterm infants during the first twelve months at home following discharge from a neonatal intensive care unit. A qualitative, interpretative approach using Gadamer's philosophical hermeneutics was carried out. One focus group and fifteen in-depth, semi-structured interviews were conducted twelve months after hospital discharge. Responses were recorded, transcribed and analyzed using computer-assisted qualitative data analysis. The study´s participants were twenty women. The following themes emerged from the data analysis: 1) 'The journey home: the discharge process', which included the sub-themes 'escaping the hospital environment: between desire and fear' and 'preparing parents for hospital discharge: practice and formal support'; and 2) 'The difficulty of living with an extremely preterm infant', including the sub-themes 'the challenge of an unexpected form of childcare', 'overprotection of and bond with a child with special needs' and 'disturbance in the social/familiar setting: when a mother becomes a nurse'. The process of hospital discharge and the first months at home are difficult. The birth and care of an extremely preterm infant affect the mothers' quality of life as well as their family and social life. Practice and early discharge programmes can make the discharge process easier. The knowledge and understanding of the experience of mothers of extremely preterm infants in the first months at home after hospital discharge could help healthcare professionals to develop educational strategies and counselling interventions in accordance with the mothers' needs. [Abstract copyright: Copyright © 2018 Elsevier Inc. All rights reserved.

    Understanding violence against women irregular migrants who arrive in Spain in small boats

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    African irregular migrants risk their lives crossing the Mediterranean Sea in small boats hoping to reach Europe. Women irregular migrants (WIMs) are an especially vulnerable group that suffer from violence and sexual aggression, but little is known about their actual experiences. The objective of our study is to describe and understand the violence against WIMs who arrive in Spain in small boats. A qualitative study based on Gadamer’s phenomenology was used. The data collection included twenty-six in-depth interviews with WIMs. Three main themes arose: “Poverty and discrimination push WIMs into migrating”; “WIMs as a paradigm of extreme vulnerability”, and “WIMs in small boats should raise the alarm”. WIMs who arrive to Europe in small boats have a history of violence, rape, prostitution, forced pregnancy, and human trafficking. Emergency care must include gynecological examinations and must make detecting sexual violence and human trafficking of WIMs part of their care protocols
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