Consensus recommendations on organization of care for individuals with Phelan-McDermid syndrome

The manifestations of Phelan-McDermid syndrome (PMS) are complex, warranting expert and multidisciplinary care in all life stages. In the present paper we propose consensus recommendations on the organization of care for individuals with PMS. We indicate that care should consider all life domains, which can be done within the framework of the International Classification of Functioning, Disability and Health (ICF). This framework assesses disability and functioning as the outcome of the individual's interactions with other factors. The different roles within care, such as performed by a centre of expertise, by regional health care providers and by a coordinating physician are addressed. A surveillance scheme and emergency card is provided and disciplines participating in a multidisciplinary team for PMS are described. Additionally, recommendations are provided for transition from paediatric to adult care. This care proposition may also be useful for individuals with other rare genetic neurodevelopmental disorders.</p

The Significance of Trust to the Adoption of E-Working Practices Within Local Government

Drawing upon an in-depth study of one local authority based in the United Kingdom, this article examines the significance of trust to local government workers who are beginning to make increasing use of e-technologies through e-working practices. The article identifies trust to be of particular significance but that the examined context is not supportive of that trust being developed. It notes differences in the perceptions surrounding trust development, that consideration of trust is not just limited to the relationship between management and their workers, and that there is a fear that trust is at risk of abuse. In the face of e-work serving to raise the profile of trust as a significant factor for concern, the associated technologies are suggested to have the potential to offer a solution to some of the issues arising

Gwent Tertiary College Business; February 1998

Curriculum area assessmentAvailable from British Library Document Supply Centre-DSC:7482.3275(98/14) / BLDSC - British Library Document Supply CentreSIGLEGBUnited Kingdo