Valorizzare il patrimonio del Registro Italiano ArtroProtesi (RIAP): un passo necessario per migliorare la qualità delle cure e la sicurezza del paziente

Nel 2020 il Registro Italiano ArtroProtesi (RIAP) ha compiuto 10 anni dalla sua fondazione presso l’Istituto Superiore di Sanità (ISS). Il numero degli interventi di artroprotesi in Italia cresce ogni anno mediamente del 4,2%. Istituito con la finalità di tutelare la sicurezza del paziente protesizzato e migliorare la qualità delle cure, il RIAP ha oggi tutti i prerequisiti per essere pienamente operativo e rispondere a quanto previsto dalle norme nazionali ed europee. Con la pubblicazione del Regolamento previsto dal DPCM del 3 marzo 2017 ne sarà stabilito l’iter di adesione. L’infrastruttura è pronta ed è cruciale l’attiva partecipazione di tutte le Regioni.(Enhancing the achievements of the Italian Arthroplasty Registry: a necessary step to improve the quality of care and patient safety) - In 2020 the Italian Arthroplasty Registry (RIAP) celebrates 10 years since its foundation at the Italian National Institute of Health (ISS). The number of arthroplasty operations in Italy grows by an average of 4.2% per year. Established with the aim of improving the quality of orthopaedic care and the patients’ safety, today the RIAP has all the prerequisites to be fully operational and comply with the national and European standards. The Regulation (provided for in the Prime Ministerial Decree of March 3, 2017), to be issued soon, will establish the Registry procedures access. The infrastructure is ready, and the active participation of all regions is now crucial

Patients’ Perception Of Arthroplasty Delays In Italy Due To COVID-19. Uncertainty As A New State Of Mind

Italy has been one of the nations hit the hardest by the first Covid-19 wave. To face the emergency, from March until May 2020 all delayable elective surgeries were postponed in almost all hospitals and performed at a reduced pace until the end of 2020. As a result of these conditions more than 50.000 patients, mostly suffering from osteoarthritis in need of a prosthesis implantation (hip, knee, shoulder, or ankle), have not known when the surgical activity would finally resume and when they would be operated. The first studies on this subject belong to surgery literature (Cisternas et al., 2020; Wilson et al., 2020). The intention of this explorative study is to tackle the problem of the emotional status of this vulnerable group. What were their key emotions about the situation of uncertainty, how did they manage it, and how did it influence the doctor-patient relationship? Our main objective is to obtain a snapshot of the situation and to lay the basis for further considerations on what can be done to mitigate the risk of the growing disorientation on the patients' side. From a methodology point of view, the research consisted in semi-structured interviews on a sample of patients of public and private hospitals in Italy, as well as with orthopaedic surgeons members of the scientific committee of the Italian Arthroplasty Registry (RIAP). Results have been compared to the international literature on the subject. Understanding patient's perception of both their own state of health and the uncertainty of the situation might help improve the decision-making in public health, hence benefiting the quality of the care services

Attitude and concerns of healthy individuals regarding post-mortem brain donation. A qualitative study on a nation-wide sample in Italy

Abstract Background Collecting post-mortem brain tissue is essential, especially from healthy “control” individuals, to advance knowledge on increasingly common neurological and mental disorders. Yet, healthy individuals, on which this study is focused, are still understudied. The aim of the study was to explore, among healthy potential brain donors and/or donors’ relatives, attitude, concerns and opinion about post-mortem brain donation (PMBD). Methods A convenience sampling of the general population (twins and their non-twin contacts) was adopted. From June 2018 to February 2019, 12 focus groups were conducted in four Italian cities: Milan, Turin, Rome and Naples, stratified according to twin and non-twin status. A qualitative content analysis was performed with both deductive and inductive approaches. Emotional interactions analysis corroborated results. Results One hundred and three individuals (49–91 yrs of age) participated. Female were 60%. Participants had scarse knowledge regarding PMBD. Factors affecting attitude towards donation were: concerns, emotions, and misconceptions about donation and research. Religion, spirituality and secular attitude were implied, as well as trust towards research and medical institutions and a high degree of uncertainty about brain death ascertainment. Family had a very multifaceted central role in decision making. A previous experience with neurodegenerative diseases seems among factors able to favour brain donation. Conclusions The study sheds light on healthy individuals’ attitudes about PMBD. Brain had a special significance for participants, and the ascertainment of brain death was a source of debate and doubt. Our findings emphasise the importance of targeted communication and thorough information to promote this kind of donation, within an ethical framework of conduct. Trust in research and health professionals emerged as an essential factor for a collaborative attitude towards donation and informed decision making in PMBD

Additional file 1 of Attitude and concerns of healthy individuals regarding post-mortem brain donation. A qualitative study on a nation-wide sample in Italy

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