16 research outputs found
Specialized outpatient clinic for deaf and hard of hearing patients in the Netherlands: Lessons learned in an attempt to improve healthcare
Availability of specialized healthcare facilities for deaf and hard of hearing individuals.
Context: To allow a medical consultation to proceed successfully, it is essential that physicians are aware of the linguistic and cultural backgrounds of deaf and hard of hearing individuals (DHH) and related communication aspects. Some specialised healthcare facilities have emerged to respond to the specific needs of people who are DHH. Objective: This study aims to provide insight into the various types of general healthcare facilities available for DHH individuals. By sharing and comparing experiences and results improvements can be made. Design, Data Sources and Study selection: A systematic review of the literature on specialised healthcare for DHH people was performed. The following databases were searched: PubMed, Web of Science, PsycINFO, Academic Search Premier, CINAHL and Embase. After independent extraction per article by two readers, fifteen articles were included in the systematic review. As it appeared that not all existing locations of facilities of which we were aware were described in the literature, we expanded the data collection with internet searches, specific literature searches and unstructured interviews. Results: Some countries have developed facilities to meet the needs DHH people Experts and patients’ groups report that the perceived quality of healthcare and health education in specialised healthcare settings is higher compared to regular healthcare settings. Two projects undertaken to improve the health related knowledge level of DHH people, proved to be effective. Conclusion: Some facilities or combinations of facilities are used in different countries to attempt to meet the needs of DHH patients. These facilities are rarely described in the scientific literature. Further development of specialised healthcare facilities for DHH patients, which should include high quality studies on their effectiveness, is imperative to comply with medical ethical standards and respect the human rights of DHH people
Specialized outpatient clinic for deaf and hard of hearing patients in the Netherlands: Lessons learned in an attempt to improve healthcare
No association between glucocorticoid receptor polymorphisms and long-term respiratory outcome after very preterm birth
Developmen
Gender differences in respiratory symptoms in 19-year-old adults born preterm
Objective: To study the prevalence of respiratory and atopic symptoms in (young) adults born prematurely, differences between those who did and did not develop Bronchopulmonary Disease (BPD) at neonatal age and differences in respiratory health between males and females. Methods: Design: Prospective cohort study. Setting: Nation wide follow-up study, the Netherlands. Participants: 690 adults (19 year old) born with a gestational age below 32 completed weeks and/or with a birth weight less than 1500g. Controls were Dutch participants of the European Community Respiratory Health Survey (ECRHS). Main outcome measures: Presence of wheeze, shortness of breath, asthma, hay fever and eczema using the ECRHS-questionnaire
Health Related Quality of Life of People Who are Deaf or Hard-of-Hearing
Purpose: Patient groups and healthcare workers report that people who are deaf or hard of hearing (DHH), have poorer health and wellbeing. The aim of this study is to gain insight into the health of DHH people in the Netherlands.Methods: The physical and mental health of participants was measured using the World Health Organization Quality of Life- Bref scale (WHOQoL- BREF). Participants filled out an epidemiological questionnaire and questions about the mode of language they generally use. All questionnaires were translated into two versions of Sign Language of the Netherlands (NGT) according to a forward- backward translation protocol, a written version and a sign supported Dutch (SSD) version of the questionnaire were also provided. Results: The questionnaires were completed by 274 DHH people. Both deaf and hard of hearing people, regardless of the age of onset, reported having poorer physical health than their hearing peers. Hard of hearing people reported more psychological difficulties than control group. Conclusions: It is important that DHH people are recognized as a patient group with specific health problems. More research into the nature and effects of this specific health problems is needed. The creation of more awareness of these health problems among DHH people and their healthcare workers essential.РезимеЦел:Цел: Групите на пациенти и здравствени работници известуваат дека лицата кои се глуви или имаат оштетен слух (deaf or hard of hearing (DHH) - ГОС), имаат послабо здравје и добросостојба. Целта на ова истражување е да добие увид во здравствената состој- ба кај лицата кои се глуви или имаат оштетен слух во Холандија. Методи: Физичкото и психичкото здравје на учесни- ците беше измерено со употреба на Бреф скалата за утврдување на квалитетот на живот создадена од Светската здравствена организација (WHOQoL- BREF).Учесниците одговорија на прашањата од епидеми- олошкиот прашалник и на прашања за тоа каков моделнајазиктиенајчестоупотребуваат.Ситепра- шалници беа преведени во две верзии, знаковниот јазикнаХоландијасогласносопреведувачкиотпро- токол за напред-назад, писмена верзија и верзијана прашалникотнаправенанахоландскијазиксокојсе поддржува знаковниотјазик. Резултати: Прашалницитебеапополнетиодстрана на274ГОСлица.Идветегрупинаглувилицаионие коиштоимаатоштетенслух,безогледнавозраста когапрвпатзапочналозаболувањето,известијадека имаат послабо физичко здравје од нивнитеврсници кои немаат проблеми со слухот. Лицата со оштетен слух укажаа дека имаат повеќе психолошки тешкотии воспоредбасоконтролнатагрупа. Заклучоци:ЗначајноеГОСлицатадабидатиден- тификувани како група на пациенти со посебни здрав- ствени проблеми. Потребни се повеќе истражувања за природата и ефектите на посебните здравствени проб-леми.Создавањетонапоголемасвестзаовиездрав- ствени проблеми помеѓу ГОС лицата и нивните здравствениработнициеесенцијална