総会抄録

<p>Subcategories and categories are presented in alphabetical order.</p

Information needs of survivors and families after childhood CNS tumor treatment: a population-based study

<p><b>Background:</b> This study examines information needs and satisfaction with provided information among childhood central nervous system (CNS) tumor survivors and their parents.</p> <p><b>Material and methods:</b> In a population-based sample of 697 adult survivors in Sweden, 518 survivors and 551 parents provided data. Information needs and satisfaction with information were studied using a multi-dimensional standardized questionnaire addressing information-related issues.</p> <p><b>Results:</b> Overall, 52% of the survivors and 48% of the parents reported no, or only minor, satisfaction with the extent of provided information, and 51% of the survivors expressed a need for more information than provided. The information received was found useful (to some extent/very much) by 53%, while 47% did not find it useful, or to a minor degree only. Obtaining written material was associated with greater satisfaction and usefulness of information. Dissatisfaction with information was associated with longer time since diagnosis, poorer current health status and female sex. The survivors experienced unmet information needs vis-à-vis late effects, illness education, rehabilitation and psychological services. Overall, parents were more dissatisfied than the survivors.</p> <p><b>Conclusion:</b> These findings have implications for improvements in information delivery. Information in childhood CNS tumor care and follow-up should specifically address issues where insufficiency was identified, and recognize persistent and with time changing needs at the successive stages of long-term survivorship.</p

Categories and subcategories of distress reported by young survivors of adolescent cancer reporting a need for psychological support.

<p>Categories and subcategories of distress reported by young survivors of adolescent cancer reporting a need for psychological support.</p

Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support

<div><p>Objective</p><p>In this qualitative study, we aimed to provide an in-depth exploration of cancer-related psychological distress experienced by young survivors of cancer during adolescence reporting a need for psychological support.</p><p>Methods</p><p>Two individual interviews were held with ten young survivors of cancer diagnosed in adolescence. The interviews were audio-recorded and transcribed verbatim. Analysis followed the guidelines for inductive qualitative manifest content analysis.</p><p>Results</p><p>The survivors described distress experienced during and after the end of treatment. Five categories comprising 14 subcategories were generated. The categories included: A tough treatment, Marked and hindered, Not feeling good enough, Struggling with the fragility of life, and finally, An ongoing battle with emotions.</p><p>Conclusion</p><p>Young survivors of adolescent cancer reporting a need for psychological support described feeling physically, socially, and mentally marked by the cancer experience. They struggled with powerlessness, insecurity, social disconnection, loneliness, and feelings of being unimportant and a failure, and had difficulties understanding and managing their experiences. These concerns should be addressed in psychological treatments for the population irrespective of which approach or model is used to understand survivors’ difficulties. A trans-diagnostic approach targeting processes that underpin different manifestations of distress may be effective.</p></div

Categories and subcategories of distress reported by young survivors of adolescent cancer reporting a need for psychological support.

<p>Categories and subcategories of distress reported by young survivors of adolescent cancer reporting a need for psychological support.</p

Participant characteristics.

<p>Participant characteristics.</p

Impact of a child’s cancer disease on parents’ everyday life: a longitudinal study from Sweden

<p><b>Background:</b> A child’s cancer disease may disrupt the daily life of the affected family for a long period. The aim was to describe restrictions on parents’ leisure activities and work/studies during and after the child’s treatment.</p> <p><b>Methods:</b> This study used data from a cohort of mothers and fathers (n = 246) of children diagnosed with cancer. Data was collected five times from two months after diagnosis to one year after end of treatment. Reports of restrictions were evaluated over time, between mothers and fathers, and in relation to parent-reported child symptom burden (The Memorial Symptom Assessment Scale) and partial post-traumatic stress disorder (PTSD) (The PTSD Checklist-Civilian Version).</p> <p><b>Results:</b> Two (51%) and four (45%) months after diagnosis, about half reported that their leisure activities were restricted at least some of the time. Corresponding percentages for restrictions on work/studies were 84% and 77%. One year after end of treatment, the great majority reported that their leisure activities (91%) and/or work/studies (76%) were never/seldom restricted. During treatment, more mothers than fathers reported restrictions on work/studies all/most of the time. After end of treatment, gender was only related to reports of restrictions among parents not reporting partial PTSD. More parents who reported being restricted all/most of the time also reported partial PTSD and/or a greater symptom burden for the child.</p> <p><b>Conclusion:</b> Parents report frequent restrictions on everyday life during treatment. One year after end of treatment, parents report only a limited impact of the child’s cancer on their leisure activities and work/studies. More parents who report restrictions also report partial PTSD and/or a greater child symptom burden. The effect of gender on restrictions varies depending on reports of partial PTSD. Future studies of gender differences regarding the impact of a child’s cancer on parents’ everyday life should thus consider mothers’ and fathers’ level of psychological distress.</p

The effect of word-type and group on response latency in the emotional Stroop task (error bars represent standard errors [SE]).

<p>The effect of word-type and group on response latency in the emotional Stroop task (error bars represent standard errors [SE]).</p

Demographic and Clinical Characteristics for the Participants and their Children.

<p>Demographic and Clinical Characteristics for the Participants and their Children.</p

Response Latencies in Milliseconds as a Function of Word-Type for the Full Sample.

<p>Response Latencies in Milliseconds as a Function of Word-Type for the Full Sample.</p