Understanding and tracking the impact of long COVID in the United Kingdom

There is now a rich body of knowledge on acute COVID-19, but much less is known about the risk factors, clinical presentation, duration and management of persistent or new symptoms following recovery from initial infection, often termed long COVID. Post-infection follow-up data show that a significant proportion of hospitalized and non-hospitalized patients experience persistent symptoms and organ dysfunctio

Characterisation of data quality in electronic healthcare records

The use of electronic healthcare systems for recording patient treatment history is well established across the UK healthcare sector, the potential benefits of using such systems being numerous. Within the primary care setting, electronic healthcare records (EHR) can provide a near complete picture of patient care over time. This not only affords the opportunity to improve patient care directly through effective monitoring and identification of care requirements but also offers a unique platform for both clinical and service-model research [1] essential to the longer term development of the health service. The potential for using routinely collected patient records for research purposes has been steadily increasing [2] with recent advances and diminishing technical barriers in data storage and information processing. There are, however, significant challenges in using EHRs effectively in the research setting and in ensuring the quality of data recorded for this purpose. Incorrect or missing data can render records as useless or indeed misleading such that conclusions drawn from the data could have a negative impact. The aim of this chapter is to outline both the key challenges to the management and assessment of data quality in EHRs and the key considerations for meeting these challenges. The Clinical Practice Research Datalink database CPRD GOLD, globally recognised as being one of the largest and most detailed sources of electronic patient data, will be used as an example throughout. In Sect. 2, the concept of data quality is presented within the setting of primary care databases and a framework for its assessment is set out, based on findings of an investigation carried out on CPRD GOLD. In Sect. 3, the importance of understanding data quality of an individual source of data in relation to alternative sources, both intra- and inter-nationally, is examined, posing the emerging challenges to the future use EHRs for research. Finally Sect. 4 investigates data quality requirements from the perspective of a range of stakeholders through discussion of a day-long CPRD-led data quality workshop and we consider the way forward to a more comprehensive approach to tackling issues of data quality in EHRs