Development of the Personal and Professional Self-Care Scale

In recent years, there has been an increased emphasis on the importance of self- care for psychologists and other mental health professionals. However, the research on self-care is limited because of the lack of an empirically based, psychometrically sound measure of this construct. Thus, the purpose of this project was to develop a measure of personal and professional self-care. The preliminary phase involved the development of a self-care definition and a two-factor framework that divided self-care into personal and professional activities. Based on this definition and framework, self-care items were generated for expert evaluation. After incorporating the expert feedback, 52 potential self-care sale items were selected for use in the initial validation study. A total of 422 licensed psychologists in Illinois completed the Self-Care and Professional Well-Being Survey. This survey contained the 52 self-care items as well as other measures of personal and professional well-being. Contrary to expectations, a two-factor structure for self-care was not supported. Factor analysis reduced the self-care scale to 34-items representing eight factors: Life Balance, Professional Development, Cognitive Strategies, Daily Balance, Professional Support, Exercise, Diet, and Sleep. The validity analyses provided strong initial support for the validity of the first five factors listed above. However, the validity support for the physical self-care factors was not as strong. Based on factor analysis and validity data, a five-factor, 28-item “Professional Self-Care Scale” was established for validation and use in future research

The formation of the advisory group on risk evaluation education for dementia

BackgroundWhen and how to communicate effectively the results of genetic and biomarker based prediction, detection, and quantification of the brain substrates of dementia involve important ethical and legal issues critical for precision medicine. The urgency of the issue has increased as People Living with Dementia (PLwD) and with Risk for Dementia (PwRD) can access direct to consumer genetic testing, amyloid targeting drugs, and clinical amyloid PET scans. To address the need for effective dissemination and consultation, an advisory group was convened that welcomes all interested members.MethodMembers attend two meetings monthly via phone/computer/WebEx. One meeting is a targeted working group that focuses on the following: 1. Symptomatic (PLwD), 2. Asymptomatic (PwRD), 3. Research, 4. Ethics/Healthcare Law, 5. Trainee/Mentorship. These discussion groups hear from and present to stakeholders (PLwD/PwRD/caregivers, professional organizations, companies) to solicit feedback on the efficacy of their efforts. Members also attend a monthly - all hands- meeting where they receive updates from other groups and hear presentations on emerging research and resources.ResultThe advisory group is composed of 104 members who represent advocacy/stakeholders (21%, e.g. professional organization representatives, (PLwD/PwRD/caregivers, FDA), academia (78%, e.g. university, funders, foundations), and healthcare law (1%). Professions include geneticists, genetic counsellors, researchers, clinicians, ethicists, and lawyers. Motivations for joining include improving communication in research and clinical contexts, mitigating potential negative impacts (e.g.emotional distress or discrimination), and protecting rights to know. Topics have included DTC genomics, the impact of APOE disclosure, genetics and personalized medicine, ecological momentary assessment of response to disclosure, and ethical issues in national and international research registries (EPAD). Activities included a survey on disclosure practices in NIA funded ADCs and collaborations with ADEAR. Stakeholders varied in concerns ranging from a need to protect patients from disclosure to a need to protect the right of access.ConclusionMembership is increasing and is engaging diverse specialties and stakeholders who provide education and consultation around communication and use of genetic and biomarkers related to dementia. The group structure and inclusion of members from multiple organizations supports open and free collaboration. Future efforts will be developing structured education for stakeholders and publications.Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/163965/1/alz045562.pd