Proceso e importancia del duelo por perdida perinatal y neonatal en los progenitores y sus familias

El propósito de la presente investigación es dar a conocer el proceso de duelo y el manejo de éste en aquellas familias que han perdido un hijo durante la gestación y posterior al nacimiento durante las primeras semanas de vida. Las familias que pierden un embarazo transitan por un duelo desautorizado, pues este tipo de duelo suele verse como menos importante porque se suele tener la creencia de que los familiares no han generado un vínculo afectivo lo suficientemente fuerte con este, por lo general los padres que sienten síntomas intensos de duelo solicitan atención integral para poder sobrellevar el dolor que les causa la pérdida de su hijo, ésta atención es importante ya que si no se le brinda la atención oportuna a éstas personas pueden llegar a desarrollar un duelo complicado o patológico el cual puede desencadenar un trastornos psicológico.Proceso e importancia del duelo por pérdida perinatal y neonatal en los progenitores y sus familias. -- Process and importance of mourning for peronatal and neonatal loss in parents and their families. -- Línea de investigación. -- Resumen. --Palabras clave. --Summary. --Keywords:. --Introducción. -- Objetivo. --Objetivo general. --Objetivos específicos. --Marco teórico. --Duelo. --Fases de duelo. --Duelo perinatal y neonatal. --Metodología. -- Resultados. -- Conclusiones. --Reflexiones finales y sugerencias. --Referencias Bibliográ[email protected]@[email protected]

Utilidad de los resultados informados por los pacientes en el grupo focal de artritis reumatoide.

Patient-reported outcomes (PROs) have become an essential part of the assessment of patients with rheumatoid arthritis (RA). We aimed to evaluate the agreement and correlation between PROs and the physician's measurements. Methods. This was a cross-sectional analytical study in which 135 patients with RA were clinically evaluated during two different sessions of focus group interviews. Rheumatologist recorded 28 swollen (SJCs) and tender joint counts (TJCs). The patients filled out the PROs instruments (MDHAQ, RADAI, RAPID3, 4, and 5 and self-report articular index (SAI) diagram for pain and joint swelling). DAS28 was calculated (C-reactive protein). An adjusted multiple lineal regression model was done (DAS28 as dependent variable). Results. Highly significant agreements were found between SJC and TJC registered by the physician and patient. There was moderate correlation between DAS28 with patient SJC (r = 0.52), patient TJC (r = 0.55), RADAI (r = 0.56), RAPID3 (r = 0.52), RAPID4 (r = 0.56), RAPID5 (r = 0.66), and VAS-Global (r = 0.51). Likewise, we found moderate to high correlations between CDAI and SDAI with all variable measurements done by the patients. The resulting predictive equation was DAS28(CRP) = 2.02 + 0.037 * RAPID4 + 0.042* patient SJC. Conclusion. PROs applied in focus groups interview are a useful tool for managing patients with RA regardless of gender, educational level, and duration of disease

Utilidad de los resultados informados por los pacientes en el grupo focal de artritis reumatoide.

Patient-reported outcomes (PROs) have become an essential part of the assessment of patients with rheumatoid arthritis (RA). We aimed to evaluate the agreement and correlation between PROs and the physician's measurements. Methods. This was a cross-sectional analytical study in which 135 patients with RA were clinically evaluated during two different sessions of focus group interviews. Rheumatologist recorded 28 swollen (SJCs) and tender joint counts (TJCs). The patients filled out the PROs instruments (MDHAQ, RADAI, RAPID3, 4, and 5 and self-report articular index (SAI) diagram for pain and joint swelling). DAS28 was calculated (C-reactive protein). An adjusted multiple lineal regression model was done (DAS28 as dependent variable). Results. Highly significant agreements were found between SJC and TJC registered by the physician and patient. There was moderate correlation between DAS28 with patient SJC (r = 0.52), patient TJC (r = 0.55), RADAI (r = 0.56), RAPID3 (r = 0.52), RAPID4 (r = 0.56), RAPID5 (r = 0.66), and VAS-Global (r = 0.51). Likewise, we found moderate to high correlations between CDAI and SDAI with all variable measurements done by the patients. The resulting predictive equation was DAS28(CRP) = 2.02 + 0.037 * RAPID4 + 0.042* patient SJC. Conclusion. PROs applied in focus groups interview are a useful tool for managing patients with RA regardless of gender, educational level, and duration of disease