Autism Spectrum Disorder and the Child\u27s Weight–Related Behaviors: A Parents\u27 Perspective

Purpose To explore parent perspectives of how the attributes of their child\u27s autism spectrum disorder(ASD) impact nutrition, physical activity, screen time behaviors and risk for obesity. Secondarily, we examined the parent\u27s perception of the healthcare providers (HCP) influence on these weight-related behaviors. Design and method We conducted and audio-recorded telephone interviews with parents of children with ASD (n = 8) using a structured question guide. Data were transcribed and thematic analysis was conducted. Issues surrounding weight-related behaviors and parental strategies used were reported. Results Two overarching themes with eight subthemes emerged: (1) Challenges related to features of ASD (subthemes included fixation on food, sensory issues/rigidity, developmental factors, impaired social skills, and medication effects) and (2) Challenges related to the care of children with ASD (subthemes included lack of individualized care planning, picking your battles and the impact of ASD on family). Conclusion Strategies extracted from the parent narratives promoted both healthy and unhealthy weight-related behaviors. The key finding in this study is that some parents did not follow HCP guidance when they perceived that the HCP did not understand their particular situation. Practice Implications Implementation of healthy weight-related behaviors can be optimized when providers consider the child\u27s challenging ASD behaviors, affirm the difficulties encountered by the family and provide guidance that builds on the individual child/family strengths

Contentment in “Songs of the Gorilla Nation: My Journey through Autism”: A humanbecoming hermeneutic study

Contentment is a universally lived experience that is inexplicably intertwined with health and quality of life. The aims of this humanbecoming hermeneutic study were to identify the essence of the experience of contentment, to contribute to knowledge about humanbecoming, and to contribute to the knowledge base of nursing. The source of data collection was the text of Songs of the Gorilla Nation: My Journey through Autism. Through a hermeneutic process of discoursing with penetrating engagement, interpreting with quiescent beholding, and understanding with inspiring envisaging the structure of the lived experience of contentment was illuminated in the text. The finding is that contentment is enduring serenity unfolding with inspiring unburdening as cherished convictions arise amid disharmony. This finding is comprised of three core concepts: enduring serenity, cherished convictions, and inspiring unburdening. This answers the research question: What is the structure of the lived experience of contentment as described in the text of Songs of the Gorilla Nation: Living with Autism. The findings are discussed in relation to how they enhance understanding of contentment and humanbecoming and how they can inform practice and future research