How to improve healthcare for autistic people: A qualitative study of the views of autistic people and clinicians

Autism spectrum condition is associated with co-occurring physical health conditions and premature mortality. Autistic people experience multiple barriers to accessing healthcare. This study investigated autistic people’s experiences of healthcare and professionals’ experiences of providing healthcare to autistic people. Focus groups with 11 autistic people and one supporter, and 15 one-to-one interviews with healthcare professionals were completed. Nine themes emerged from the autistic participants’ data and eight themes emerged from the health professionals’ data. Three themes were identified by both groups: healthcare contacts (for improving the patient–provider relationship), making reasonable adjustments to healthcare (e.g. providing alternative places to wait for an appointment) and autism diagnosis. Autistic participants discussed the role of cognitive factors in the success of healthcare visits (such as rehearsing an anticipated conversation with the clinician the night before an appointment) and clinicians described system-level constraints that may affect healthcare delivery (such as time limits on appointments). This study identified inexpensive changes that health professionals and managers can make to improve healthcare access for autistic people. Lay abstract Research has shown that on average, autistic people are more likely to die earlier than non-autistic people, and barriers can stop autistic people accessing healthcare. We carried out a study where we interviewed healthcare professionals (including doctors and nurses), and held discussion groups of autistic people. Our results highlighted several key points: seeing the same professional is important for autistic people and clinicians; both clinicians and autistic people think making adjustments to healthcare is important (and often possible); autistic people process information in a different way and so may need extra support in appointments; and that clinicians are often constrained by time pressures or targets

A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults

Autistic people are more likely to: be diagnosed with a range of physical health conditions (i.e. cardio-vascular disease); experience premature mortality (for most disease categories); and experience barriers to effectively accessing healthcare. This systematic review sought to identify studies that report on barriers and facilitators to physical healthcare access for autistic people. A total of 3111 records were screened and six studies were included: two quantitative, two qualitative, and two mixed-methodology studies. Patient-provider communication, sensory sensitivities, and executive functioning/planning issues emerged as important barriers to healthcare. Recommendations for clinicians and those planning services are discussed

A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults

Autistic people are more likely to: be diagnosed with a range of physical health conditions (i.e. cardio-vascular disease); experience premature mortality (for most disease categories); and experience barriers to effectively accessing healthcare. This systematic review sought to identify studies that report on barriers and facilitators to physical healthcare access for autistic people. A total of 3111 records were screened and six studies were included: two quantitative, two qualitative, and two mixed-methodology studies. Patient-provider communication, sensory sensitivities, and executive functioning/planning issues emerged as important barriers to healthcare. Recommendations for clinicians and those planning services are discussed

Aboriginal interpretation in Australian wildlife tourism

This paper evaluates Aboriginal cultural interpretation at wildlife attractions and on wildlife tours in Australia. The sites included 14 wildlife parks or zoos; three Aboriginal-owned emu or crocodile farms; and 16 wildlife tours, river cruises or resorts with Indigenous interpretation of wildlife. Telephone interviews were conducted with 35 managers (nine Indigenous) and 26 Indigenous staff at wildlife attractions that included verbal or written Aboriginal wildlife interpretation. The Indigenous guides verbally presented both traditional uses and personal stories about Australian wildlife followed by Aboriginal 'Dreaming' or creation stories about totemic animal species. Non-Indigenous staff explained traditional Aboriginal uses of wildlife followed by biological facts and species information. The responses in this study thus highlight cultural differences in animal attitudes and approaches to wildlife use or interpretation. According to staff, tourists benefit from the inclusion of Aboriginal interpretation at wildlife sites by broadening their mind, dispelling myths, learning/education about Aboriginal cultures, novelty and excitement for visitors, increasing cultural awareness and developing more positive attitudes towards Indigenous people. Some guidelines for wildlife attractions and tours to develop and present Aboriginal cultural interpretation of Australian wildlife are also identified