Understanding Lived Experiences of Stigma for People Living with HIV: A Community Based Participatory Research Study

The goal of this project was to better understand the experiences and impacts of HIV stigma and discrimination on people living with HIV and to co-create knowledge that has the potential to challenge existing stigma within the healthcare, social services, and public policy sectors in the province of Alberta, Canada. We employed community-based participatory research and a mixed methods design (survey methods and qualitative interviews) to address these questions. An online survey was completed by 148 people living with HIV and semi-structured interviews were conducted with an additional 20 participants. The research findings have been conceptualized within a social ecological model. The four main categories that emerged from the data included personal level factors attributed to HIV stigma, interpersonal factors related to HIV stigma, community factors related to HIV stigma, and HIV stigma in systems and institutions. Within each ecological domain we highlight the strengths and coping strategies people living with HIV identified in the study. Results will be of interest to health researchers and HIV service providers

High Touch Research: Building Community for Those Living with HIV

Participatory action research can be a research methodology that seeks to offer relational processes that develop high touch research relationships, create co-empowerment, while fostering resiliency and strength, within the HIV community. The Calgary HIV Social Society (CHSS) in Calgary, Alberta, Canada co-developed with peer-researchers at Mount Royal University, a progressive form of action-oriented research that allowed the HIV community to develop and provide social gatherings to reduce the impact of stigma and isolation. The research project was developed with the community of people living with HIV to reduce the impact of isolation and stigma. The focus of the research was to better understand how social gatherings could improve the quality of life for those living with HIV. The action-oriented methodology allowed for HIV peer-researchers to bring their expertise on what was needed to reduce stigma and isolation. The HIV social support community created participatory action research processes that successfully contributed to building an inclusive, community for people living with HIV. This paper will share the themes that acknowledge the significant impact that a HIV high touch relationship research community can have for those, who face the barriers of isolation and stigma by increasing community connection, reducing financial constraints that limit participation, while increasing mental health wellness