Open access and data sharing: Easier said than done

This is an interview with Dr. Gholson Lyon, Assistant Professor and researcher at Cold Spring Harbor Laboratory. Dr. Lyon's work focuses on understanding the pathophysiological basis of neuropsychiatric conditions, with a long-term goal of expanding access to preventive services and treatment for these disorders. Dr. Lyon is also committed to the open discussion and management of the ethical implications of human genetics research, along with helping to move whole genome sequencing into the clinical world. He frequently speaks about the challenges of integrating genomics into clinical medicine and is vocal about the need for open access and data sharing and was among the 14,699 academicians who boycotted Elsevier for its restrictions on the dissemination of publications

Translating translational medicine into global health equity: What is needed?

While genomics, and other omics, research is rapidly advancing in the US and Europe, progress has been slower in less resourced countries. The imbalance has given rise to concern about whether the benefits of these advances, namely new and better tests, treatments, risk identification, and prevention strategies, will be shared and available to those living in less resourced reaches of the globe. In effort to give voice to researchers, an informal survey about barriers to advancing translational medicine was administered to attendees of the 11th Asia Pacific Conference on Human Genetics, 2015, Hanoi. The overall goal of the survey was to identify unmet needs and rank their importance. Most attendees completed the survey. Not surprisingly funding is indicated as a major need. Respondents reported that lack of bioinformatics and computational tools, trained data scientists and access to datasets is creating a significant lag behind better resourced regions. Results are intended to inform efforts to create a regional consensus statement of need. Such a regional statement could help funding organizations and policy makers seeking to promote global genomics benefit sharing

Other Voices piece by Carol Isaacson Barash, Ph.D., of Hartford, a genetics an

Other Voices piece by Carol Isaacson Barash, Ph.D., of Hartford, a genetics and ethics consultant, essayist and children\u27s book author. Barash, a trained philosopher, kept copious notes on roadside litter, and during the summers of 1995 and 1996 recorded weekly averages of 65 returnable bottles and cans