98 research outputs found

    Latino immigration to Smalltown, North Carolina: transformations in El Nuevo South

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    This study employed ethnographic methods to explore changes in occupational engagement for Latinos immigrating to Smalltown, North Carolina. Study participants noted changes in the sensory experiences of engagement in occupations in Smalltown. These experiences were contrasted to past experiences in immigrants' countries of origin. The transformations of sensory experiences precipitated feelings of alienation, negative wellbeing, and poor place integration. For instance, participants were alienated by the "asceptic" smells they encountered while grocery shopping in Smalltown stores. Participants were shocked by the silence in Smalltown and lamented the absence of familiar sounds. Participants also experienced tactile transformations in occupation such as the loss of physical contact during social engagements. When sensory expectations did not match sensory experiences, individuals encountered an interruption in the flow of their engagement in occupation. In addition, Latino immigrants to Smalltown experienced poor social integration due to different cultural expectations for interaction than their U.S. born counterparts. Study participants noted important cultural differences between Latinos of different nationalities. For instance, participants from Columbia expressed difficulty integrating with the Mexican majority due to differences in customs for greeting, preferences in music, and meanings attributed to words and idioms. Due to anti-immigrant sentiment and public policies, Latino immigrants to Smalltown, experienced fear, discrimination, and oppression during their occupational engagements. The fear of deportation and intense work rhythms caused many participants to withdraw from occupations with detrimental effects on emotional wellbeing. Study findings suggest individuals embody sensory habits through habituation during occupational engagements with the environment which may impede or facilitate integration with subsequent environments. Findings also demonstrate the impact of public policies on the daily engagement in occupations. Implications regarding clinical work in Occupational Therapy and research in Occupational Science are discussed

    Tiny Homes Are Huge for People Living With Serious Mental Illness

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    Purpose: A formative evaluation examined the acceptability and feasibility of tiny homes for people living with serious mental illness (SMI). Methods: The evaluation included four focus groups with people with SMI and service providers ( n = 28) and eight overnight stays with people with SMI. Results: The analysis identified six recommendations for tailoring the design of the tiny homes and the community where the homes will be located to meet the needs of people living with SMI. The recommendations for the design of the tiny homes included maximize natural light and outdoor spaces, design flexible living spaces, and ensure accessibility. The recommendations for the design of the surrounding community included ensure privacy, build a community, and maximize residents’ connectivity. Conclusions: This research serves as a starting point for interventions that aim to develop housing that is both affordable and tailored to the needs of people with SMI

    An international consensus definition for contextual factors: findings from a nominal group technique

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    Objective: Emerging literature suggests contextual factors are important components of therapeutic encounters and may substantially influence clinical outcomes of a treatment intervention. At present, a single consensus definition of contextual factors, which is universal across all health-related conditions is lacking. The objective of this study was to create a consensus definition of contextual factors to better refine this concept for clinicians and researchers. Design: The study used a multi-stage virtual Nominal Group Technique (vNGT) to create and rank contextual factor definitions. Nominal group techniques are a form of consensus-based research, and are beneficial for identifying problems, exploring solutions and establishing priorities. Setting: International. Main outcome measures: The initial stages of the vNGT resulted in the creation of 14 independent contextual factor definitions. After a prolonged discussion period, the initial definitions were heavily modified, and 12 final definitions were rank ordered by the vNGT participants from first to last. Participants: The 10 international vNGT participants had a variety of clinical backgrounds and research specializations and were all specialists in contextual factors research. Results: A sixth round was used to identify a final consensus, which reflected the complexity of contextual factors and included three primary domains: (1) an overall definition; (2) qualifiers that serve as examples of the key areas of the definition; and (3) how contextual factors may influence clinical outcomes. Conclusion: Our consensus definition of contextual factors seeks to improve the understanding and communication between clinicians and researchers. These are especially important in recognizing their potential role in moderating and/or mediating clinical outcomes

    Classification of Ventricular Septal Defects for the Eleventh Iteration of the International Classification of Diseases—Striving for Consensus: A Report From the International Society for Nomenclature of Paediatric and Congenital Heart Disease

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    The definition and classification of ventricular septal defects have been fraught with controversy. The International Society for Nomenclature of Paediatric and Congenital Heart Disease is a group of international specialists in pediatric cardiology, cardiac surgery, cardiac morphology, and cardiac pathology that has met annually for the past 9 years in an effort to unify by consensus the divergent approaches to describe ventricular septal defects. These efforts have culminated in acceptance of the classification system by the World Health Organization into the 11th Iteration of the International Classification of Diseases. The scheme to categorize a ventricular septal defect uses both its location and the structures along its borders, thereby bridging the two most popular and disparate classification approaches and providing a common language for describing each phenotype. Although the first-order terms are based on the geographic categories of central perimembranous, inlet, trabecular muscular, and outlet defects, inlet and outlet defects are further characterized by descriptors that incorporate the borders of the defect, namely the perimembranous, muscular, and juxta-arterial types. The Society recognizes that it is equally valid to classify these defects by geography or borders, so the emphasis in this system is on the second-order terms that incorporate both geography and borders to describe each phenotype. The unified terminology should help the medical community describe with better precision all types of ventricular septal defects

    Nomenclature for Pediatric and Congenital Cardiac Care: Unification of Clinical and Administrative Nomenclature – The 2021 International Paediatric and Congenital Cardiac Code (IPCCC) and the Eleventh Revision of the International Classification of Diseases (ICD-11)

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    Substantial progress has been made in the standardization of nomenclature for paediatric and congenital cardiac care. In 1936, Maude Abbott published her Atlas of Congenital Cardiac Disease, which was the first formal attempt to classify congenital heart disease. The International Paediatric and Congenital Cardiac Code ( IPCCC ) is now utilized worldwide and has most recently become the paediatric and congenital cardiac component of the Eleventh Revision of the International Classification of Diseases ( ICD-11 ). The most recent publication of the IPCCC was in 2017. This manuscript provides an updated 2021 version of the IPCCC . The International Society for Nomenclature of Paediatric and Congenital Heart Disease ( ISNPCHD ), in collaboration with the World Health Organization (WHO), developed the paediatric and congenital cardiac nomenclature that is now within the eleventh version of the International Classification of Diseases (ICD-11). This unification of IPCCC and ICD-11 is the IPCCC ICD-11 Nomenclature and is the first time that the clinical nomenclature for paediatric and congenital cardiac care and the administrative nomenclature for paediatric and congenital cardiac care are harmonized. The resultant congenital cardiac component of ICD-11 was increased from 29 congenital cardiac codes in ICD-9 and 73 congenital cardiac codes in ICD-10 to 318 codes submitted by ISNPCHD through 2018 for incorporation into ICD-11. After these 318 terms were incorporated into ICD-11 in 2018, the WHO ICD-11 team added an additional 49 terms, some of which are acceptable legacy terms from ICD-10, while others provide greater granularity than the ISNPCHD thought was originally acceptable. Thus, the total number of paediatric and congenital cardiac terms in ICD-11 is 367. In this manuscript, we describe and review the terminology, hierarchy, and definitions of the IPCCC ICD-11 Nomenclature . This article, therefore, presents a global system of nomenclature for paediatric and congenital cardiac care that unifies clinical and administrative nomenclature. The members of ISNPCHD realize that the nomenclature published in this manuscript will continue to evolve. The version of the IPCCC that was published in 2017 has evolved and changed, and it is now replaced by this 2021 version. In the future, ISNPCHD will again publish updated versions of IPCCC , as IPCCC continues to evolve

    Tetralogy of Fallot

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    Tetralogy of Fallot is a congenital cardiac malformation that consists of an interventricular communication, also known as a ventricular septal defect, obstruction of the right ventricular outflow tract, override of the ventricular septum by the aortic root, and right ventricular hypertrophy

    Guidelines and protocols for cardiovascular magnetic resonance in children and adults with congenital heart disease: SCMR expert consensus group on congenital heart disease

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