Leisure in Children and Adolescents with Juvenile Idiopathic Arthritis: A Systematic Review

<div><p></p><p>The aim of this systematic review is to describe participation in social and physical leisure activities among children and adolescents with JIA, as well as identify potential determinants of leisure participation.</p><p>Methods</p><p>Electronic databases were systematically searched for articles published up until June 2013 pertaining to participation in leisure activities among youth with JIA and other rheumatic diseases. Studies were included if they measured involvement in either social or physical leisure activities. Selection and quality appraisal of articles were completed independently by two authors.</p><p>Results</p><p>Eight hundred and ninety-three articles were found through electronic and reference search. One hundred and nine full articles were reviewed to assess for eligibility. Twelve articles met inclusion criteria and findings were reviewed. Most focused on describing participation in physical rather than social activities. Results suggest that youth with JIA participated less in both social and physical leisure activities as compared to healthy peers, and those with JIA did not meet national recommendations for physical activity. Potential determinants of leisure participation were socio-demographic (age, sex), anthropometric (height, weight) and disease-related (JIA subtype, disease duration, pain, number of swollen or painful joints, stiffness, fatigue, well-being) factors.</p><p>Conclusion</p><p>Characterization of leisure activity remains limited and mostly focused on physical activity in JIA. Assessment of more comprehensive outcome measures is warranted to obtain a better description of leisure in this population. Evidence of the influence of contextual factors as potential determinants of involvement in leisure among children with pediatric rheumatologic diseases is needed.</p></div

Findings of systematic review on leisure participation in children and adolescents living with juvenile arthritis.

<p>JIA, Juvenile idiopathic arthritis; UCMS, University of Cincinnati Motion Sensor; HC, Healthy controls; PA, Physical activity; PAL, Physical activity level; TB BMD, Total body bone mineral density; CBCL, Child Behaviour Checklist.</p><p>Findings of systematic review on leisure participation in children and adolescents living with juvenile arthritis.</p

PRISMA Flow Diagram of Included Articles.

<p><a href="http://www.plosone.org/article/info:doi/10.1371/journal.pone.0104642#pone-0104642-g001" target="_blank">Figure 1</a> presents a PRISMA flow diagram of articles included in the systematic review as well as the main reasons for rejection.</p

Developing a Canadian evaluation framework for patient and public engagement in research: study protocol

Background: Patient and public engagement (PPE) in research is growing internationally, and with it, the interest for its evaluation. In Canada, the Strategy for Patient-Oriented Research has generated national momentum and opportunities for greater PPE in research and health-system transformation. As is the case with most countries, the Canadian research community lacks a common evaluation framework for PPE, thus limiting our capacity to ensure integrity between principles and practices, learn across projects, identify common areas for improvement, and assess the impacts of engagement. Objective: This project aims to build a national adaptable framework for the evaluation of PPE in research, by: 1. Building consensus on common evaluation criteria and indicators for PPE in research; 2. Defining recommendations to implement and adapt the framework to specific populations