2 research outputs found
Caring for the Caregiver: Incentivizing Medical Providers to Include Caregivers as Part of the Treatment Team
More than 1 in 5 people in the United States care for a family member, friend, or neighbor with a health care need or functional disability. More family caregivers find themselves caring for multiple people (24 percent) and working while caregiving (61 percent). Family caregivers face increasing complexity meeting the medical and support needs of their care recipients; 7 in 10 do so with no paid help. Without adequate and affordable services and supports, the escalating demands on family caregivers contribute to their physical, emotional, financial strain, and decline in self-reported health.In this white paper, published by The National Alliance for Caregiving, experts discuss incentives in the existing Medicare program that could motivate health systems and providers to offer more robust support to family caregivers.Click "Download" to access this resource
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Conceptual Framework to Guide Intervention Research Across the Trajectory of Dementia Caregiving.
This article presents a comprehensive conceptual framework designed to foster research in the changing needs of caregivers and persons with dementia as they move through their illness trajectory. It builds on prior theoretical models and intervention literature in the field, while at the same time addressing notable gaps including inadequate attention to cultural issues; lack of longitudinal research; focus on primary caregivers, almost to the exclusion of the person with dementia and other family members; limited outcome measures; and lack of attention to how the culture of health care systems affects caregivers' quality of life. The framework emphasizes the intersectionality of caregiving, sociocultural factors, health care systems' factors, and dementia care needs as they change across time. It provides a template to encourage longitudinal research on reciprocal relationships between caregiver and care recipient because significant changes in the physical and/or mental health status of one member of the dyad will probably affect the physical and/or mental health of the partner. This article offers illustrative research projects employing this framework and concludes with a call to action and invitation to researchers to test components, share feedback, and participate in continued refinement to more quickly advance evidence-based knowledge and practice in the trajectory of dementia caregiving