Another science for another world?: Science and genomics at the London Social Forum

The 3rd meeting of the European Social Forum was held in London during October 2004 with a broad ranging formal agenda and a penumbra of affiliated workshops and cultural activities. This paper focuses upon a range of sessions dealing with science in general and the sciences of human genetics in particular. Through participant observation this paper details the representations of science by ESF actors, their use of the ESF as a ‘convergence space’ for global activist network interaction and the various ways in which participants sought to create a more socially responsible and accountable science. Drawing on observations of, and participation in, these sessions we describe how scientific knowledge and practices were portrayed in the context of neo-liberal market relations by both ‘producers’ and ‘consumers’ of techno-science. The concluding section considers the implications of (re)negotiating scientific and social orders within such open network spaces. It is argued that ‘broad and shallow’ and ‘narrow and deep’ approaches towards public understanding of science need to be supplemented by the ‘broad and diverse’ processes typifying the forum milieu

Praxis and practice : the 'what, how and why' of the UK environmental direct action movement in the 1990s

SIGLEAvailable from British Library Document Supply Centre- DSC:DXN064741 / BLDSC - British Library Document Supply CentreGBUnited Kingdo

Trouble with biocitizenship : duties responsibility, identity.

Genetic and other biotechnologies are starting to impact significantly upon society and individuals within it. Rose and Novas draw on an analysis of many patient groups to sketch out the broad notion of biocitizenship as a device for describing how the empowered and informed individual, group or network can engage with bioscience. In this paper, we examine critically the notion of biocitizenship, drawing on both sociological fieldwork that grounds the debate in the views of a large and varied group of concerned actors. Using work within green politics, we identify shortcomings in the concept of biocitizenship as it has so far been explicated. The value assumptions lying behind an account of biocitizenship, and its tendency to see issues through a reductive lens, are examined. Alternative views of values and goals, which may undermine any alleged rights and duties, are explored using interviews and other ethnographic data that illustrates the complexity of the terrain. The reductive lens of biocitizenship is explored through contrast with the wider scope of concerns emanating from various sources, including many within green politics. If such complexities are not recognised, there is a danger that a concept of biocitizenship may serve to create and amplify inequalities. Problems with identity issues are key: the construction of identity is complex and many groups are explicitly rejecting the ‘biological’ label. We discuss the multiple relations of citizens with the biotech and pharmaceutical industries. Arguably, existing inequalities in power relationships, exploitation, commodification and ownership patterns are being perpetuated in novel ways through the new biosciences. We pose the question of whether it is possible to construct a concept of biocitizenship that overcomes these problems

Listening Without Prejudice? Re-Discovering the Value of the Disinterested Citizen

Public participation in technological decision-making is increasingly seen as de rigueur, but the limits and purpose of such participation remain open to debate. In this paper we explore the tension between different rationales for widening participation and examine their implications for its practice. Taking debates about medical genomics in the UK as an illustrative example, we argue that more heterogeneous participation and debate have the potential to improve the scrutiny and accountability of science within representative democracies. In doing so we also argue that it is necessary to replace the language of `lay expertise' with a more systematic and rigorous treatment of the expertise or its absence that characterizes different participants. Drawing on the theoretical work of Collins & Evans (2002), we distinguish between those processes where expert knowledge is required and debate is conducted within the public domain, rather than by the public itself, and those where the views of non-expert lay citizens are needed and valued. The effect of adopting this approach is to permit a more inclusive treatment of the `technical' while also providing a positive role for non-expert citizens in the democratic control and oversight of science

Human rights and genomics: science, genomics and social movements at the 2004 London Social Forum

The third meeting of the European Social Forum (ESF) was held in London during October 2004 with a broad ranging formal agenda and a penumbra of affiliated workshops and cultural activities. We draw on participant observation in all sessions dealing with science and genomics and offer an evaluation of Rothman's (2000) argument that NGOs and protest movements have a vital role to play in consolidating and disseminating the UN Universal Declaration on the Human Genome and Human Rights. The paper positions the ESF as a constituent part of the World Social Forum network, identifies the key ESF networks and actors concerned with science and genomics, and analyses the various action, grievance and mobilisation frames generated within the 2004 ESF. It concludes with a discussion of the potential of this networked movement milieu to realise the goals identified in Rothman's work