17 research outputs found

    An observational study of individual child journeys through autism diagnostic pathways, and associated costs, in the UK National Health Service

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    BackgroundDemand for diagnostic assessment in children with possible autism has recently increased significantly. Services are under pressure to deliver timely and high-quality diagnosis, following National Institute and Care Excellence multidisciplinary assessment guidelines. This UK National Health Service study aimed to answer: how many hours of health professional time are required to deliver autism diagnostic assessment, and how much does this cost?.MethodCase notes of 20 children (1–16 yrs.) from 27 NHS trusts, assessed through an autism diagnostic pathway in the previous year, were examined retrospectively. Data included: hours of professional time, diagnostic outcome. Assessment costs calculated using standardised NHS tariffs.Results488 children (aged 21–195 months, mean 82.9 months, SD 39.36) from 22 Child Development Services (CDS), four Child and Adolescent Mental Health Services (CAMHS) and one tertiary centre; 87% were either under 5 (36%) or 5 to 11 years (51%). Children seen by CDS were younger than CAMHS (mean (SD) 6.10 (2.72) vs. 10.39 (2.97) years, p < 0.001). Mean days to diagnosis were 375 (SD 235), with large variation (range 41–1553 days). Mean hours of professional time per child was 11.50 (SD 7.03) and varied substantially between services and individuals. Mean cost of assessment was £846.00 (SD 536.31). 339 (70.0%) children received autism diagnosis with or without comorbidity; 54 (11%) received no neurodevelopmental diagnosis; 91 (19%) received alternative neurodevelopmental diagnoses. Children with one or more coexisting conditions took longer to diagnose, and assessment was more costly, on average 117 days longer, costing £180 more than a child with no neurodevelopmental diagnosis. Age did not predict days to diagnosis or assessment costs.ConclusionTypical assessment took 11 h of professional time and over 12-months to complete, costing GB£850 per child. Variation between centres and children reflect differences in practice and complexity of diagnostic presentation. These results give information to those delivering/planning autism assessments using multi-disciplinary team approach, in publicly funded health systems. Planning of future diagnostic services needs to consider growing demand, the need for streamlining, enabling context appropriate services, and child/family complexity

    Contesting ownership:employee-ownership, staff participation in the English care sector

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    This article investigates how care workers understood ownership and experienced employee-ownership through the exercise of workplace participation and control. To date much of the scholarly work has focused on formal governance arrangements, types of participation and the limitations of worker control, in particular debating the validity of the degeneration thesis. Furthermore, studies tend to be concentrated on small-scale cooperatives or specific marginal examples, but employee-owned enterprises have also been introduced in other sectors, including in English health, social care and well-being sectors. By drawing on two case studies providing care services, this study brings new insights by centring on how staff understood, embraced, and subsequently contested the foundational concept of ownership. The subsequent implications for intraorganisational conflict and the lived experience of staff are explored within a theoretical framework based on (1) how different social science disciplines embrace the concept of ownership, (2) workplace participation within employee-owned entities and (3) the unique characteristics of care services. The paper’s originality lies in combining new empirical data in the context of these three areas. This contribution enhances our understanding of how employees interpret being “an owner”, as well as informing scholarly and public-policy debates about the future models for care provision

    Bailed out and burned out? The financial impact of COVID-19 on UK care homes for older people and their workforce

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    A review of the impact of COVID-19 (and our response) to adult care home organisations and their workforce
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