Shaping Quality of Life with Nursing Assistance. A Grounded Theory Approach to Nursing Care for People with Physical Disabilities and Interactions with Carers in Long-Term Care

Context: Although the number of people with physical disabilities who need nursing support is increasing, there is a lack of empirical knowledge about how they experience necessary care support. This knowledge is a prerequisite for enabling self-determination in the provision of care and for providing care based on needs and requirements. People with physical disabilities live in residential institutions and their own homes with the support of care services, and they are dependent on permanent nursing assistance. Objective: This qualitative grounded theory study describes the importance that people with physical disabilities ascribe to the provision of care and how they organise their cooperation with caregivers. Methods: Twenty-seven problem-centred interviews with people who had a permanent physical disability and a need for care were analysed using the grounded theory approach. Findings: People with physical disabilities and a need for care want to enhance their quality of life with assistance. Quality of life is influenced by their wishes regarding assistance, acceptance of the physical disability, (previous) experience with assistance and the possibility of actively influencing the implementation of necessary assistance. The development and maintenance of a friendly relationship with professional carers represent a strategy for achieving quality of life. Limitations: This study focuses on people with physical disabilities who receive care from a professional service. Questions about the influence on family carers remain unanswered. Implications: For successful social participation, people with physical disabilities should be supported by nursing professionals to identify and express their priorities and needs

Intuition as a component of nursing action in outpatient care - Originating contexts and features of intuitive action

The research work examines the originating contexts, components and features of intuitive nursing action in outpatient care. In the theoretical section of the work, the basic content of nursing action within the realm of nursing science and in the care sector of outpatient care is set out. Following on from this, there follows a description of the research subject, intuition. Here, the theoretical and research-based existing knowledge on the phenomenon of intuition is incorporated from the key reference disciplines of nursing science and the discipline of nursing. The empirical examination aimed at recording the phenomenon of intuition in outpatient care rests on the foundations of qualitative social research. The epistemological basis is symbolic interactionism. In order to uncover an empirically-founded theory, the grounded-theory methodology was used. The methods of data gathering formed a triangulation of participatory observation with video documentation, and guided interviews with video analysis. As a result, two modes of nursing action were identified as components of an action model, in the form of a slide presentation of intuitive action. The action model comprises a conceptual, case-related design by caregivers for their actions in relation to care recipients. It reflects the normality of action, and functions as an orientation framework for nursing actions. Intuition as a situation-linked trigger for action leads on the one hand to routine actions which correspond to the model and contribute towards its consolidation. On the other hand, intuition triggers actions which deviate from the model of the caregiver and contribute to its expansion. The intuitive actions are presented in the form of manual (e.g. as routine), linguistic (e.g. as coding) and materialized actions (e.g. physical touching). Intuition in outpatient care constitutes individualized, situation-linked knowledge of action oriented towards everyday professional work, which is based in particular on empirical knowledge and cognitive abilities. The intuitive actions may be understood as a skill of caregivers for the purpose of structuring their complex everyday professional work. Intuition - understood as a skill - also means that caregivers grasp situations rapidly and sufficiently, solve or anticipate problematic situations, and generate understanding and cooperation with care recipients. Here, the results also reveal misdirecting intuition.Intuitive action in outpatient care is not an isolated single performance by a caregiver, but a component of an interactive-dialogical action mechanism, which integrates the worlds of meaning and lifestyle habits of the care recipients. The results are to be understood as a contribution to nursing science aimed at adding reflection and discussion to the body of knowledge relating to intuitive knowledge of practice and to develop it further in conceptual terms. The results may contribute to a scientifically-grounded action orientation in practice, and professional self-monitoring within the discipline

Intuition als Bestandteil pflegerischen Handelns in der ambulanten Pflege - Entstehungskontexte und Merkmale intuitiven Handelns

The research work examines the originating contexts, components and features of intuitive nursing action in outpatient care. In the theoretical section of the work, the basic content of nursing action within the realm of nursing science and in the care sector of outpatient care is set out. Following on from this, there follows a description of the research subject, intuition. Here, the theoretical and research-based existing knowledge on the phenomenon of intuition is incorporated from the key reference disciplines of nursing science and the discipline of nursing. The empirical examination aimed at recording the phenomenon of intuition in outpatient care rests on the foundations of qualitative social research. The epistemological basis is symbolic interactionism. In order to uncover an empirically-founded theory, the grounded-theory methodology was used. The methods of data gathering formed a triangulation of participatory observation with video documentation, and guided interviews with video analysis. As a result, two modes of nursing action were identified as components of an action model, in the form of a slide presentation of intuitive action. The action model comprises a conceptual, case-related design by caregivers for their actions in relation to care recipients. It reflects the normality of action, and functions as an orientation framework for nursing actions. Intuition as a situation-linked trigger for action leads on the one hand to routine actions which correspond to the model and contribute towards its consolidation. On the other hand, intuition triggers actions which deviate from the model of the caregiver and contribute to its expansion. The intuitive actions are presented in the form of manual (e.g. as routine), linguistic (e.g. as coding) and materialized actions (e.g. physical touching). Intuition in outpatient care constitutes individualized, situation-linked knowledge of action oriented towards everyday professional work, which is based in particular on empirical knowledge and cognitive abilities. The intuitive actions may be understood as a skill of caregivers for the purpose of structuring their complex everyday professional work. Intuition - understood as a skill - also means that caregivers grasp situations rapidly and sufficiently, solve or anticipate problematic situations, and generate understanding and cooperation with care recipients. Here, the results also reveal misdirecting intuition.Intuitive action in outpatient care is not an isolated single performance by a caregiver, but a component of an interactive-dialogical action mechanism, which integrates the worlds of meaning and lifestyle habits of the care recipients. The results are to be understood as a contribution to nursing science aimed at adding reflection and discussion to the body of knowledge relating to intuitive knowledge of practice and to develop it further in conceptual terms. The results may contribute to a scientifically-grounded action orientation in practice, and professional self-monitoring within the discipline

Das integrative Basisverfahren von Kruse als qualitativ-rekonstruktive Methode für Interviews am Beispiel von Menschen mit geistiger Behinderung

Geukes C, Latteck Ä-D. Das integrative Basisverfahren von Kruse als qualitativ-rekonstruktive Methode für Interviews am Beispiel von Menschen mit geistiger Behinderung. Journal für Qualitative Forschung in Pflege- und Gesundheitswissenschaft . 2018;5(2)

Menschen mit geistiger Behinderung als Co-Forschende – Entwicklung eines Schulungsprogramms

Voß M, Geukes C, Latteck Ä-D. Menschen mit geistiger Behinderung als Co-Forschende – Entwicklung eines Schulungsprogramms. Teilhabe. 2019;58(3):104-108

Health literacy in people with intellectual disabilities: A mixed-method literature review

Geukes C, Bruland D, Latteck Ä-D. Health literacy in people with intellectual disabilities: A mixed-method literature review. Kontakt. 2018;20(4):e416-e423

Menschen mit Lernschwierigkeiten sind im Nachteil. Erfahrungen zur Förderung der Gesundheitskompetenz in der Eingliederungshilfe

Bruland D, Geukes C, Latteck Ä-D. Menschen mit Lernschwierigkeiten sind im Nachteil. Erfahrungen zur Förderung der Gesundheitskompetenz in der Eingliederungshilfe. Forum Sozialarbeit + Gesundheit. 2019;2019(2):20-23

Promoting physical activity in everyday life of people with intellectual disabilities: An intervention overview

Nutsch N, Bruland D, Latteck Ä-D. Promoting physical activity in everyday life of people with intellectual disabilities: An intervention overview. Journal of Intellectual Disabilities. 2021: 174462952110264.People with intellectual disabilities show significantly lower levels of physical activity than the general population in respect to all consequences for health. A positive effect of physical activity on health preservation has been proven, but interventions for physical activity in everyday life seem to be rare for people with intellectual disabilities. Based on a previously conducted scoping review the Template for Intervention Description and Replication (TIDieR) checklist was prepared. This article describes and compares physical activity interventions in everyday life for individuals with intellectual disabilities with the aim to of identifying successful strategies and areas for improvement. The 12 included interventions are heterogeneous, but commonalities and similarities can be identified. There are suggestions for successful strategies to implement physical activity interventions. However, much information could not be found. The promotion of healthier lifestyles is important to improve the overall health in this population

Health Literacy and People with Intellectual Disabilities: What We Know, What We Do Not Know, and What We Need: A Theoretical Discourse

Although health literacy is widely discussed and many heterogeneous conceptualizations exist, people with intellectual disabilities have remained largely unconsidered. The purpose of this conceptual paper is to analyze the particularities of this target group and discuss and consider implications that arise when conceptualizing the health literacy of people with intellectual disabilities. Therefore, we explore relevant approaches from multiple disciplines and examine their transferability to a conceptual understanding of health literacy for people with intellectual disabilities. For future directions we identified three main dimensions: (1) disentangle health literacy from empowerment; (2) apply a positive, asset-based focus to health literacy; and (3) focus on health literacy as a distributed resource across individuals and their individual life-world

Health Literacy and People with Intellectual Disabilities: What We Know, What We Do Not Know, and What We Need: A Theoretical Discourse.

Geukes C, Bröder J, Latteck Ä-D. Health Literacy and People with Intellectual Disabilities: What We Know, What We Do Not Know, and What We Need: A Theoretical Discourse. International journal of environmental research and public health. 2019;16(3): 463.Although health literacy is widely discussed and many heterogeneous conceptualizations exist, people with intellectual disabilities have remained largely unconsidered. The purpose of this conceptual paper is to analyze the particularities of this target group and discuss and consider implications that arise when conceptualizing the health literacy of people with intellectual disabilities. Therefore, we explore relevant approaches from multiple disciplines and examine their transferability to a conceptual understanding of health literacy for people with intellectual disabilities. For future directions we identified three main dimensions: (1) disentangle health literacy from empowerment; (2) apply a positive, asset-based focus to health literacy; and (3) focus on health literacy as a distributed resource across individuals and their individual life-world