Voice banking for people living with motor neurone disease: Views and expectations

Background: More than 80% of people living with MND (plwMND) develop difficulties with their speech, affecting communication, self-identity and quality of life. Most plwMND eventually use an augmentative and alternative communication device (AAC) to communicate. Some AAC devices provide a synthesized voice for speech, however these voices are often viewed as impersonal and a factor in AAC acceptance. Voice banking creates an approximation of the person's own voice that can be used in AAC and is argued to go some way to preserve a person's identity when natural voice is lost, but there has been little supporting research. // Aims: To understand what plwMND consider when deciding whether or not to bank their voice, what their expectations are, and the expectations of significant communication partners. // Methods: Semi-structured interviews were undertaken with plwMND who had either decided to bank their voice or had decided not to. Thematic analysis was used to provide a qualitative analysis of the data. // Procedures: Participants were an opportunistic sample of plwMND within England recruited via an open advert distributed by the MND Association (MNDA). // Outcomes and Results: Twelve plwMND were interviewed with nine significant others. Nine participants had decided to bank their voice and three decided not to. The data suggest ‘preserving identity’ is the overarching motivation in decision making for voice banking. Participants who decided to voice bank considered it would help to maintain their identity and preserve their social and work networks. Participants deciding not to bank their voice highlighted it could not replace their natural voice or preserve their identity. However, few in either group showed an awareness of how a voice bank is used in AAC, and how communication using AAC is significantly different to natural speech. // Conclusions and Implications: This research is the first study of its kind to examine the considerations for decision making around voice banking for plwMND. Preserving identity is central to decision making when considering whether or not to voice bank. However, the reality of using AAC and voice banking for communication is poorly understood. Professionals have a role to provide plwMND with more information about voice banking in the wider context of using AAC for communication. It may be that the process of voice banking itself is seen as a positive act for plwMND, independent of how it is used later. Further research with associated professionals and stakeholders is indicated

IberSPEECH 2020: XI Jornadas en Tecnología del Habla and VII Iberian SLTech

IberSPEECH2020 is a two-day event, bringing together the best researchers and practitioners in speech and language technologies in Iberian languages to promote interaction and discussion. The organizing committee has planned a wide variety of scientific and social activities, including technical paper presentations, keynote lectures, presentation of projects, laboratories activities, recent PhD thesis, discussion panels, a round table, and awards to the best thesis and papers. The program of IberSPEECH2020 includes a total of 32 contributions that will be presented distributed among 5 oral sessions, a PhD session, and a projects session. To ensure the quality of all the contributions, each submitted paper was reviewed by three members of the scientific review committee. All the papers in the conference will be accessible through the International Speech Communication Association (ISCA) Online Archive. Paper selection was based on the scores and comments provided by the scientific review committee, which includes 73 researchers from different institutions (mainly from Spain and Portugal, but also from France, Germany, Brazil, Iran, Greece, Hungary, Czech Republic, Ucrania, Slovenia). Furthermore, it is confirmed to publish an extension of selected papers as a special issue of the Journal of Applied Sciences, “IberSPEECH 2020: Speech and Language Technologies for Iberian Languages”, published by MDPI with fully open access. In addition to regular paper sessions, the IberSPEECH2020 scientific program features the following activities: the ALBAYZIN evaluation challenge session.Red Española de Tecnologías del Habla. Universidad de Valladoli