Improving physician–patient communication

This chapter looks at improving physician–patient communicatio

Identification of delivery models for the provision of predictive genetic testing in Europe: protocol for a multicentre qualitative study and a systematic review of the literature

Introduction: The appropriate application of genomic technologies in healthcare is surrounded by many concerns. In particular, there is a lack of evidence on what constitutes an optimal genetic service delivery model, which depends on the type of genetic test and healthcare context considered. The present project aims to identify, classify, and evaluate delivery models for the provision of predictive genetic testing in Europe and in selected Anglophone extra-European countries (the USA, Canada, Australia, and New Zealand). It also sets out to survey the European public health community’s readiness to incorporate public health genomics into their practice. Materials and equipment: The project consists of (i) a systematic review of published literature and selected country websites, (ii) structured interviews with health experts on the genetic service delivery models in their respective countries, and (iii) a survey of European Public Health Association (EUPHA) members’ knowledge and attitudes toward genomics applications in clinical practice. The inclusion criteria for the systematic review are that articles be published in the period 2000–2015; be in English or Italian; and be from European countries or from Canada, the USA, Australia, or New Zealand. Additional policy documents will be retrieved from represented countries’ government-affiliated websites. The results of the research will be disseminated through the EUPHA network, the Italian Network for Genomics in Public Health (GENISAP), and seminars and workshops. Expected impact of the study on public health: The transfer of genomic technologies from research to clinical application is influenced not only by several factors inherent to research goals and delivery of healthcare but also by external and commercial interests that may cause the premature introduction of genetic tests in the public and private sectors. Furthermore, current genetic services are delivered without a standardized set of process and outcome measures, which makes the evaluation of healthcare services difficult. The present study will identify and classify delivery models and, subsequently, establish which are appropriate for the provision of predictive genetic testing in Europe by comparing sets of process and outcome measures. In this way, the study will provide a basis for future recommendations to decision makers involved in the financing, delivery, and consumption of genetic services

Jefferson Digital Commons quarterly report: January-March 2020

This quarterly report includes: New Look for the Jefferson Digital Commons Articles COVID-19 Working Papers Educational Materials From the Archives Grand Rounds and Lectures JeffMD Scholarly Inquiry Abstracts Journals and Newsletters Master of Public Health Capstones Oral Histories Posters and Conference Presentations What People are Saying About the Jefferson the Digital Common

Disability and the Muslim Perspective: An Introduction for Rehabilitation and Health Care Providers

[Excerpt] This monograph offers an introduction to and overview of a broad spectrum and diversity of Muslims with disabilities and chronic health conditions who come from a variety of backgrounds and circumstances. The perspective provided here also highlights larger issues of human rights. Given the current immigration trends in the United States, it is critical that service providers work across cultures and systems to help Muslims access disability and health care services and resources in their communities. Over the years, service professionals and researchers have come to recognize that individuals with disabilities and health conditions do not always hold the same health beliefs, understandings, objectives, and priorities as the service providers they encounter. The result is an intercultural gap in understanding between clients and providers that may result in a poor treatment or rehabilitative outcome. This monograph will use the terms client, consumer, and patient interchangeably to denote those seeking disability services, medical services, or both. We emphasize that to bridge the gap between Muslim service users and mainstream U.S. service systems, service providers in disability and rehabilitation systems need to increase their sensitivity and ability to accommodate differences between their services and the needs of their clients

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Achieving change in primary care—causes of the evidence to practice gap : systematic reviews of reviews

Acknowledgements The Evidence to Practice Project (SPCR FR4 project number: 122) is funded by the National Institute of Health Research (NIHR) School for Primary Care Research (SPCR). KD is part-funded by the National Institute for Health Research (NIHR) Collaborations for Leadership in Applied Research and Care West Midlands and by a Knowledge Mobilisation Research Fellowship (KMRF-2014-03-002) from the NIHR. This paper presents independent research funded by the National Institute of Health Research (NIHR). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health. Funding This study is funded by the National Institute for Health Research (NIHR) School for Primary Care Research (SPCR).Peer reviewedPublisher PD

Health Care in California and National Health Reform

CED believes that the U.S. employer-based health insurance system is failing -- and the recently enacted health reform, the Patient Protection and Affordable Care Act (PPACA), will not reverse that dynamic. Fewer American workers have insurance now than did ten years ago; and fewer American firms are offering health insurance now than did then. Many people do without care because they are not covered, or fear -- with justification -- that one illness or the loss of a job will cost them their coverage. The competitiveness of American firms is threatened by the cost of health insurance. Public budgets at every level of government are eroded by the costs of health care, including costs that previously were paid by employers. Although the new law will create pathways to private coverage for some people who are not insured by their employers, and many others will be made eligible for Medicaid, the clear intent is to maintain employer coverage for as many as possible -- and there is precious little in the law to improve this core structure of the U.S. healthcare system. We have proposed a fundamental restructuring of the health-care system to address this crisis. With the nation having focused on this issue, we have worked to learn what the health-care system of California can teach us about national reform, and how national reform might affect California

Layperson Perceptions and Attitudes Towards a National Electronic Health Record Introduction in Saudi Arabia

Introduction: Since patients and the general public may interact with a national electronic health record (EHR), including them during implementation of an EHR is important. Such acceptance has been documented as one of the critical areas in the development of a national EHR. However, only a few studies have considered public perceptions and attitudes regarding use of their health information in a universal EHR. This is the first study that concentrated on Saudi patients and citizens’ attitudes regarding a national EHR. . Objectives: The purpose of this quantitative study was to understand perceptions and attitudes regarding the introduction of a national EHR among the Saudi citizenry. Methodology: This study used a cross-sectional survey, which was designed based on a literature review and interviews with a small subset of the target population. The final survey was distributed by hand as well as through the internet. Analysis: The data was analyzed by conducting descriptive, bivariate and logistic regression tests. Results: Most of the Saudi citizens supported the development of a national EHR system, which might be used for several services, such as healthcare, health services planning and health research. Twelve percent of respondents reported being undecided in their view and only 2% of them would be opposed to such a system. In terms of accessing health records in a national EHR, most were in favor of accessing their complete record. The study results also highlighted that more than 70% of respondents would be concerned about the security of their health record if it were to become part of a national EHR. The results also revealed significant differences in levels of support depending on sociodemographic characteristics. Working in health related jobs and level of education were important factors related to level of support for the development of a national EHR. Furthermore, it indicated that there is no significant relationship between preferences for access to a national EHR and demographic, education and health related characteristics. Conclusion: These findings support the need for expediting the incorporation of health information technology, especially an EHR in healthcare organizations in Saudi Arabia. Making a national EHR as an optimal goal before adoption of a local EHR in each healthcare institution will help to facilitate the complex implementation. Findings of this study can be generalized and extrapolated to other societies that have similar cultural factors. Furthermore, the results potentially benefit the policy makers in Saudi Arabia