It's not just What you do, it's also the Way that you do it: Patient and Public Involvement in the Development of Health Research

Abstract

This is a pre-copyedited, author-produced version of an article accepted for publication in International Journal for Quality in Health Care following peer review. The version of record will be available online at: https://academic.oup.com/intqhc/issue, DOI: 10.1093/INTQHC/MZX177.Purpose: This paper presents a reflective account of Patient and Public Involvement (PPI) in the development of obesity and binge eating research. Method: We established Patient Advisory Groups (PAGs) at two English regional National Health Service (NHS) weight management services. PPI was evaluated as follows; (1) PAG members completed a PPEQ, (2) PAG meetings captured group discussion on PPI involvement, (3) practitioner and researchers produced written reflections on PPI, (4) sources one to three were consolidated during reflections that took place via e-mail and telephone correspondence between researchers and practitioners, culminating in a summary SKYPE meeting between one practitioner and one researcher involved in the PAGs. Results: Results in the form of reflections suggest guidelines on undertaking PPI were helpful with regards what to do, but less helpful on how. For example, suggestions for the management of interpersonal factors such as eliciting self-disclosure and managing power differentials are insufficiently addressed in existing guidelines. Conclusions: The present case study illustrated how interpersonal considerations can help or hinder the optimal use of PPI. Recommendations for practitioners and researchers planning PPI are offered