Nizzi, Marie-Christine

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Future Directions in Feminist Phenomenology The University of Western Ontario, London, Ontario May 23-25, 2013 David Chu International Centre, WSS 2130  Dr. Marie-Christine Nizzi, Harvard University Thursday May 23, 3:30  From Armchair to Wheelchair: How Patients with a Locked-in Syndrome Integrate Bodily Changes in Experienced Identity ABSTRACT Different sort of people are interested in personal identity. Philosophers frequently ask what it takes to remain oneself. Caregivers imagine their patients’ experience. But both philosophers and caregivers think from the armchair: they can only make assumptions about what it would be like to wake up with massive bodily changes. Patients with a locked-in syndrome (LIS) suffer a full body paralysis without cognitive impairment. They can tell us what it is like. Forty-four chronic LIS patients and 20 age-matched healthy medical professionals answered a 15-items questionnaire targeting: (A) global evaluation of identity, (B) body representation and (C) experienced meaning in life. In patients, self-reported identity was correlated with B and C. Patients differed with controls in C. These results suggest that the paralyzed body remains a strong component of patients’ experienced identity, that patients can adjust to objectives changes perceived as meaningful and that caregivers fail in predicting patients’ experience.  

From Armchair to Wheelchair: How Patients with a Locked-in Syndrome Integrate Bodily Changes in Experienced Identity

https://ir.lib.uwo.ca/cgi/viewcontent.cgi?article=1006&amp;context=fdfp

From Armchair to Wheelchair: How Patients with a Locked-in Syndrome Integrate Bodily Changes in Experienced Identity

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