Cancer is the leading cause of death among Alaska Native people Nevertheless, due to improved detection awareness about cancer prevention, early screening and advances in treatment survival rates are rising

Billings, James

Lopez, Ellen D. S.

Villalobos, Ciara

Williams, Freda M.

English

ScholarWorks@UA

TEMPLATE DESIGN © 2007 www.PosterPresentations.com Intervention!Rationale & Introduction!Cited References!We Express our Gratitude to:!!!Methods/Procedures! Findings: Group Discussion!Cancer is the leading cause of death among Alaska Native people1. Nevertheless, due to improved awareness about cancer prevention, early detection screening and advances in treatment2 survival rates are rising.   Alaska Native communities describe cancer as an epidemic; wondering “Who will be next?”  Community members and their leaders have voiced their desires to gain accurate, user-friendly cancer-focused information that they can share with their family, friends, and communities.  In response, this study pilot-tested the feasibility, content, and knowledge impact of an evidence-based cancer education program developed for use with American Indian and Alaska Native peoples..  Cancer 101:  Cancer Education & Training Program for American Indians & Alaska Natives3,4  •  Purpose:  To provide a flexible, and culturally relevant cancer resource aimed at improving knowledge, attitudes, and social interaction  •  Developed to be: Evidence- and community-based •  Program comprises 10 educational modules:  •  Facilitator’s manual •  Adaptable PowerPoint slides •  Pre- and Post-intervention evaluation questions  Modules focus on:  •  The Women & Children’s Center for Inner Healing •  Our Cancer 101 participants  •  UAF College of Liberal Arts for their generous funding •  Tamara Fletcher for her unyielding support  For more information, please contact:  • Ciara Villalobos: cdvillalobos@alaska.edu • Ellen D. S. Lopez: edlopez@alaska.edu           	1.  Kelly, et al., 2012 2.  American Cancer Society, Facts & Figures, 2013 3.  Hill, et al., 2010 4.  Cancer 101 Website: http://cancer101curriculum.wordpress.com/cancer-101-aian-version/http://www.fairbanksnative.org/wccih.html 5.  WCCIH Website: http://www.fairbanksnative.org/wccih.html  How helpful or worthwhile was Cancer 101? •  Participants found the training to be helpful & an “eye-opening” experience  •  All expressed interest in exploring other 101 modules •  Participants felt their knowledge increase was not reflected by the evaluation questions posed in the pre- & post surveys “I know people living with cancer or that already passed.  Now I feel more knowledgeable & educated.” How can we improve Cancer 101? •  Participants positively described Cancer 101 as being  “fun,” “interesting,” “informative, “ & “helpful.”  •  Suggestions for improvement included: new topics (e.g., childhood cancers), more opportunities for participation, & presenting content in greater depth & detail  How have/will you used Cancer 101 information? •  Most participants have or planned to share Cancer 101 information with others. “I do plan on sharing it with family & friends” •  Several showed interest in further training to become “cancer natural helpers” – persons to whom others turn for cancer information & support.   Results: Pre & Post-Intervention Knowledge !Pilot-testing a Cancer 101 Education Curriculum with the Fairbanks Native Association’s  Women & Children’s Center for Inner Healing  Ciara Villalobos, Ellen D. S. Lopez, James Billings, Freda M. Williams Characteristic at Baseline % (n) Gender •  Female  100 (9) Age (years), range (mean) 23-70 (34) Race/Ethnicity •  White •  Alaska Native •  Yup’ik •  Athabascan •  Inupiaq  44.4 (4) 66.7 (6) •  33.3 (2) •  50.0 (3) •  16.7 (2) Education •  Less than high school •  High school/GED •  Some college  11.1 (1) 55.6 (5) 33.3 (3)  Income •  Struggle meet needs •  Have enough  77.8 (7) 22.2 (2) Health Status (self-reported) •  Very good/Good •  Fair  77.8 (7) 22.2 (2) Association with Cancer •  Cancer caregiver •  Family member with cancer •  Friend with cancer •  Interested in cancer  22.2 (7) 88.9 (8) 55.6 (5) 77.8 (7) Intervention Impact on Knowledge for 4 Modules Learning Module Pre-test Correct Answers Mean (SD) Post-test Correct Answers Mean (SD) Change in Correct Answers Mean (SD) Cancer Risk Factors  3.71 (.95) 3.86 (1.35) .14 (.69) Early Detection  3.29 (.95) 4.0 (.82) .71 (1.11) Chronic Conditions & Cancer  4.23 (.49) 4.43 (.98) .14 (.90) Supporting Survivors & Caregivers  3.86 (.38) 4.71 (.49) .86 (.38)** Note:  •  Group means comprise “correct” responses across module-specific evaluation questions (responses:  Agree, Disagree, Not Sure) •  Analysis were conducted for 8 participants completing both pre- & post surveys **  Mean change was statistically significant (p<0.01, two-sided t test) * Introductions * Consent * Pre-Survey * Post-Survey  * Discussion Group * 4 Cancer 101 Modules Setting & Recruitment!•  Participants were recruited from the Fairbanks Native Association’s Women & Children’s Center For Inner Healing (WCCINH)5 •  The mission of WCCINH is to assist women & their children through recovery, healing, healthy lifestyle & enhanced cultural pride    •  Cancer among Native Populations •  Cancer Diagnosis & Staging •  What is Cancer? •  Basics of Cancer Treatment •  Risk Factors & Risk Reduction •  Biospecimens & Biobanking •  Role of Genes in Cancer •  Chronic Disease & Cancer  •  Screening & Early Detection •  Supporting Patients & Caregivers Design:  Quasi-experimental, single (pre-post intervention) group, using mixed-methods (quantitative & qualitative) Module Module Content Focus Cancer Risk  Factors     •  Cancer defined as comprising over 100 diseases •  Biological, lifestyle, & environmental cancer risks •  Means for reducing cancer risk Early Detection •  Up-do-date screening methods & guidelines for most common cancers •  Overcoming barriers to screening Chronic Conditions  & Cancer   •  Types of chronic conditions & their associations with cancer •  Actions steps to reduce risk of illness & disability Supporting Survivors & Caregiver   •  Psychological, emotional, & social issues affecting survivors & caregivers •  Ways to be supportive •  All participants experienced cancer as friend or family member  •  Pre-test cancer knowledge was relatively high for the group •  Although pre-post knowledge increased for all 4 modules, only the ‘Supporting Survivors & Caregivers’ module showed a statistically significant improvement Implications!Participants provided positive feedback about Cancer 101 Implications: Cancer 101 is feasible & user-friendly  Knowledge change from pre- to post-test was not statistically significant.  Participant pre-test scores imply a ceiling effect – possibly attributed to overly easy & broad evaluation questions Implications:  Adapt evaluation measures to reflect detail & depth of information conveyed  Participants provided constructive feedback about Cancer 101 Implications: Continue adapting cancer 101 material to be locally relevant.  Test full (10 module) curriculum with larger population of participants 

Pilot-testing a Cancer 101 Education Curriculum with the Fairbanks Native Association’s Women & Children’s Center for Inner Healing

https://scholarworks.alaska.edu/bitstream/11122/3484/1/Villalobos%20Ciara%20R%20Day%202014.pdf

Pilot-testing a Cancer 101 Education Curriculum with the Fairbanks Native Association’s Women & Children’s Center for Inner Healing

Abstract

Similar works

Full text

Available Versions

ScholarWorks@UA