Dataset and supporting documentation collected as part of the HIV combination prevention study, a cluster randomised trial investigating the feasibility of conducting HIV combination prevention interventions in fishing communities in Uganda. The dataset contains participant-provided responses including condom use, HIV prevention practices, and intervention take-up

Abaasa, Andrew

Kamali, A

Kuteesa, Monica O.

Newton, Rob

Nsubuga, Rebecca N.

Seeley, Janet

Weiss, Helen

English

LSHTM Data Compass

HIVCOMB QUESTIONNAIRE  1  HIV COMB QUESTIONNAIRE FOR BASELINE SERO-SURVEY   INSTRUCTIONS: Consent and confidentiality. Read aloud the consent form provided to the respondent in order for him/her to understand the research and give written consent to be interviewed before proceeding with administering the questionnaire.   Circle the correct responses.    SECTION A: Social demographics Screen Question Response  Variable code A001 01 Interviewer code          INTNO     02 Date of interview  ___/____/ 2014     DATEI A002        01 ID and Residence codes ID Number  Village number Household number BMU   l_l_l_l_l_l_l_l_l  l_l_l l_l_l_l l_l_l_l IDNO  VNO HNO BMU  02 Sex Male Female 1 2 SEX  03  Date of birth  DOB   Or Age   __/__/__ Dd/mm/yy  l_l_l   DOB   AGE HIVCOMB QUESTIONNAIRE  2   Screen Question Response  CODE A003 1 Wagendako mu ssomero? Have you ever attended school? If A003=2, ->  (Go to question A004) Yes No   1 2  STUD  2 Mukisera kino osoma? Are you currently attending school/institution? (Circle code) If A003=2, ->  (Go to question A0004) Yes    1         No    2   SCHL  3 Oli kudaala kki mukusoma kwo?  At what level of education are you OR what is your highest level of education?  Pre-primary school Primary school Secondary school Higher education (e.g. college, university) Vocational college Other (Specify………………………………)  1 2 3 4  5 77  EDUC       EDUC77 HIVCOMB QUESTIONNAIRE  3   A004 1 Okola mulimu ki okusobola okwebezaawo/okufuna ensimbi?  What is your source of livelihood?   (Circle all that apply)         Fisherman  Fishmonger Market vendor  Shopkeeper  Bar attendant Farmer Housewife Student Restaurant /hotel attendant Saloon attendant Mechanic Boat owner Fish Processing Boat crew  Other                          specify……………………  1 2 3 4 5 6 7 8 9 10 11 12 13 14 77 OCCUP1 OCCUP2 OCCUP3 OCCUP4 OCCUP5 OCCUP6 OCCUP7 OCCUP8 OCCUP9 OCCUP10 OCCUP11 OCCUP12 OCCUP13 OCCUP14 OCCUP77 OCCUPSP HIVCOMB QUESTIONNAIRE  4   SECTION B: MOBILITY  B001  1 Omaze bbanga ki ng’obeera mu kitundu kino? How long have you been living in this community? (Circle code)  IF 1 year or longer, ask next question  IF less than 1 year -> Go to B001, Question 3   Less than 1 month                   1 1-3 months                      2 4-6 months                       3 Over 6 months to 1 year   4 More than 1 year              5    LIVDCOM   2  Lwaki obeera mu kitundu kino kye nnyini, n’otabeera walala mu gwanga lino? Why are you living here in this particular  Community and not anywhere else in this country? (Circle code)  If born here Go to B001, Question 6 Marriage                        1 Family                             2  Income Opportunities       3 Specify:…………….............  Rejected Elsewhere,        4 Born Here                        5 Other                               77  (Specify).................................. OINCOM3   OINCOMSP    OINCOM77  3 Wali obeera wa nga tonnajja mu kitundu kino? Where was your last residence before living in this community (Circle code)     Island                                    1 Separate village nearby     2 Entebbe                                3 Kampala                                4 Masaka town                       5 Lukaya                                   6 Other(specify...............................77                                               WLSTR     WLSTR77  HIVCOMB QUESTIONNAIRE  5    4 Eyo gye wali obeera, wamalayo bbanga ki?  How long were you living there (last residence)?   Less 1 month                       1 1-3 months                          2 4-6 months                          3 Over 6 months to 1 year    4 More than 1 year                5  Don’t remember               88     [LRMN]    5 lwaki wajja okubeera mukitundu kino? Why did you move to this present community?  (Circle code)   Marriage                                                           1  Family                                                                2  Income opportunities                                     3 Specify...................................) Rejected elsewhere                                        4 Other(Specify.....................……………….)     77                       WPLOC  INSPFY   6 Mu bbanga er’yemyezi ekkumi nebiri egiyise wali ovuddewo ko wano okumala ebbanga erisukka mu mwezi ogumu?   In the last 12 months, have you been away from your home community for more than one month at a time? (Circle code)    Yes   1 No    2   AWAY  SECTION  C:  MARITAL STATUS FEMALES ONLY  Screen Question Response CODE HIVCOMB QUESTIONNAIRE  6   C001    1 Wali ofumbiddwaako/ wali obaddeko n’omuntu gw’otwala  nga mwami wo? Have you ever been married, that is, have you ever had someone you consider as your husband?  If  No (Go to section E) Yes No  1 2 EVM     2 Walina emyaka emeka lwe wasookera ddala okufumbirwa? Menya emyaka.    |__|__| AGEMG  How old were you when you first got married? State age (in years) (list individual years)   Don’t know  Refused to answer   (___) 88 98  AGEMG  3 Embeera yo eyobufumbo eri etya? What is your current marital status?  If  1 (Ask  Question 4)  If 2, 3 or Other go to Question 5) Married/Cohabiting Widow Separated/divorced Other Specify (………….………….……………) 1 2 3 77  MRST1   MRST77  4 Olina omuntu omulala gw’otwala nga muganzi wo?  Do you have a current regular partner other than your spouse?  Yes No  Refused to answer 1 2  98 CMP  5 Olina omuntu  gw’otwala nga muganzi wo?  Do you have a current regular partner?  Yes No  Refused to answer 1 2  98 CRPO HIVCOMB QUESTIONNAIRE  7       SECTION  D:  MARITAL STATUS MALES ONLY  Screen Question Response CODE D001    1 Wali owasizako oba wali obaddeko n’omuntu gw’otwala  nga omukyala wo? Have you ever been married, that is, have you ever had someone you consider as your wife?  If 2 (Go to EOO1) Yes No  1 2 EVMD     2 Walina emyaka emeka lwe wasookera ddala okuwasa? Menya emyaka.    |__|__| AGEMG  How old were you when you first got married? State age (in years) (list individual years)   Don’t know   (___) 88   AGEMGMD   AGEMGMD  3 Embeera yo eyobufumbo eri etya? What is your current marital status?  If  1 (Ask  Question 4)  If 2, 3 or Other go to Question 5) Married Widower Separated/divorced Other  specify(……………) 1 2 3 77  MRSTD1    MRSTD77  4 Ng’ogyeeko mukyala wo, olina omuntu omulala gw’otwala nga muganzi wo?  Do you have a current regular partner other than your spouse?  Yes No  Refused to answer 1 2  98 CMPD  5 Olina omuntu  gw’otwala nga muganzi wo?  Do you have a current regular partner?  Yes No Refused to answer 1 2 98      CMPDO HIVCOMB QUESTIONNAIRE  8        SECTION E: CURRENT MAIN PARTNER Screen  Question Response  Variable code E002 1 Omuntu gw’otwala ng’omwami/mukyala womwawufu kw’oyo gwewasembayo okutabagana naye mu bikolwa eby’ekyaama?      |__|   Is your current main partner (i.e. spouse or most regular)  someone different from the person with whom you last had sex?  Yes No  Refused to answer 1 2  98 CPD  2 Okutwalira awamu, wakegatta n’abantu bameka mu bikolwa eby’ekyama mu bulamu bwo bwonna? In total, how many people have you had sex with in your lifetime? Total number   Don’t remember Refused to answer (__)  88 98   SPEVER HIVCOMB QUESTIONNAIRE  9   Sex partners in last 12 months Ngenda kukubuuza ebibuuzo ebikwata ku nsonga z’omukwano mu bbanga eryo’mwaka gumu oguyise. I am now going to ask you about the sexual relationships you have had in the past 12 months. E003 1 Wakatabagana n'abantu bameka mu bikolwa eby'ekyama mu bbanga ery’emyezi 12 egiyise? muno tutwaliddemu mukyala wo oba mwami wo, muganzi wo, n’abo ab'ekiseera obuseera, okugeza  nga kumbaga, nyimbe, disco oba ku kinyumu kyonna.   How many people have you had sex with in the last 12 months? This includes all sexual partners, whether your current main partner, regular girlfriend or casual partners. Casual partners are such persons you had sex with only once or twice for example at a party, disco or other social gathering. If None OR 99,88-> E003 (Go to question 3) None  Less than 5 6-9 10 to 19 20 and over  Don’t remember      Refused to answer 99 1 2 3 4  88 98 SPYR  2 Ate mumyezi esatu egiyise? What about in the last 3 months? Number of partners Don’t remember      None                             Refused (______) 88  99 98 SPYRMTH  3 Wali wegasseeko n’omuntu ow’ekiseera obuseera mu myezi esatu (3) egiyise? |__| WCSYR Have you had sex with a casual partner in the last 3 months? If 2, -> E003 (Go to question 7) Yes No Don’t remember Refused to answer 1 2 88 98 WCSYR  4 Mwakozesa akapira kakalimpitawa? If yes, did you use a condom? Yes No Don’t remember Refused to answer 1 2 88 98 CDMUSE HIVCOMB QUESTIONNAIRE  10   5 Ku mulundi ogwasembayo, wakozesa oba muno yakozesa akapiira?  The last time you had sex, did you or your partner use a condom? If NO, go to E003 (question 7) Yes No Refused to answer Don’t remember 1 2 98 88 LCON2  6 Nkusaba ombuulire ensonga lwaki gwe oba muganzi wo yakozesa akapiira? Please tell me the main reasons why you /your partner used a condom   (Circle all that apply)                    No reason      1 Uncertain about partner       2 To avoid pregnancy 3 To avoid STIs             4 To avoid HIV/AIDS                        5  Other                                                  77 Specify……………………      Don’t know               88    RUSE1 RUSE2 RUSE3 RUSE4 RUSE5  RUSE77 RUSESP RUSE88  7 Olowooza nsonga ki ezaleetera muganzi wo/ggwe obutakozesa kapiira? What do you think were the main reasons for you/your partner not using one?  (Interviewer to read the  responses to the participant)  (Circle all that apply) No need  Did not have one  Was raped  Do not like them  Did not know about them  Could not afford them Partner refused to use condom  Religion Culture No reason  Other Specify…………………………………… Don’t know    1 2 3 4 5 6 7 8 9 99 77  88 NTUSE1 NTUSE2 NTUSE3 NTUSE4 NTUSE5 NTUSE6 NTUSE7 NTUSE8 NTUSE9 NTUSE99 NTUSE77 NTUSESP NTUSE88   HIVCOMB QUESTIONNAIRE  11                                    8 Could you please tell me where one can get condoms in this community? (multiple responses) Mbuliraako wa omuntu gyayinza okujja obupiira mukitundu kyo?  (Circle all that apply) Retail shop      1 Pharmacy/drug  shop     2 Govt/mission health unit    3 Private clinic    4 Family planning office    5 Bar/ Hotel    6 Friend’s home   7 VHT    8 NGO’s office   9  Other  Specify.……………………        77 Don’t know            88  SHOP PHAR GOVT PCLN FPCO BAR HOT FHO NGO OCN77 OCNSP NCN88 HIVCOMB QUESTIONNAIRE  12  SECTION F: HIV TESTING AND UPTAKE OF SERVICES For all participants Screen Question Response Variable code F: HIV TESTING F001    1 Wali wekebezzaako akawuka ka mukenenya?  Have you ever taken an HIV test? If 2 (Go to F001, Question 7) Yes No Refused to answer 1 2 98 HIVT 2 Oba yee, bakukebererawa? If yes, where? Probe to identify the type of source  If other, please specify Public sector Government hospital  VCT center  Family planning clinic  Outreach  Community based VCT workers     Private/NGO medical sector Private hospital/clinic  Stand-alone VCT center  Pharmacy/drug shop  Private doctor/nurse/midwife  NGO Other   Specify……………………………  1 2 3 4 5   6 7 8 9 10 77  HIVTP              HIVTP77 3 Ddi lwewasemba okwekebeza?  When was the last time you took an HIV test? (If longer than 1 year ago go to question 3)  3 Months ago                 1 6 months ago                 2 1 year ago                       3 More than 1 year ago   4                      HIVW HIVCOMB QUESTIONNAIRE  13  4 Okuva ku mulundi ogwasembayo, Lwaki toddangamu kwekebeza?  Why haven’t you tested for HIV again since the last time you tested? Circle all that apply I don’t want to know my HIV results I fear being tested for HIV I am not at risk Counselling offices are too far There is no need I’m not interested I’ve never thought about it I am HIV positive Other Specify………………………..  1 2 3 4 5 6 7 8 9  HIVTA1 HIVTA2 HIVTA3 HIVTA4 HIVTA5 HIVTA6 HIVTA7 HIVTA8 HIVTA77 HIVTASP 5 Wafuna ebyava mukukeberebwa? Did you get the result of the test?  Yes                                                                                   No 1 2 HIVRST 6 Oba nedda lwaki tewabifuna? If not, why? I changed my mind Results did not come back I already knew my HIV results Counseling offices were too far Results took too long, became irrelevant                                                                             Other        Specify…………………………………. 1 2 3 4 5 7 HIVRN      HIVNSP     HIVCOMB QUESTIONNAIRE  14    7 Oba nedda, lwaki tewekebezangako? If not, why?   (Circle all that apply)  I don’t want to know my HIV results I fear being tested for HIV I am not at risk Counselling offices are too far There is no need I’m not interested I’ve never thought about it Other   Specify…………………  1 2 3 4 5 6 7    77 HIVNY1 HIVNY2 HIVNY3 HIVNY4 HIVNY5 HIVNY6 HIVNY7 HIVNY77 HIVNYSP Screen Question Response Variable code  G: HIV PREVENTION G001         1 Olina enkola yonna gy’omanyi eziyiza okufuna oba okusaasanya  obulwadde bwa mukenenya?  Do you know any HIV prevention methods?  Yes No 1 2 PRHIV 2 Olina enkola yonna gy’okozesa eziyiza okufuna oba okusaasanya  obulwadde bwa mukenenya? Do you practice any HIV prevention methods? If No, (Go to  G002, Question, 1) Yes No  Refused to answer 1 2  98 PRACHIV     3 Oba yee, okozesa nkola ki? If yes, which prevention practices have you currently chosen?  Abstinence Being faithful to my partner 1 2 NPHIV1 NPHIV2 HIVCOMB QUESTIONNAIRE  15                                      (Circle all that apply) Condom use Male circumcision Other 3 4 77 NPHIV3 NPHIV4 NPHIV77  If other, please specify    l___________________l l___________________l l___________________l l___________________l   NPHIVSP1 NPHIVSP2 NPHIVSP3 NPHIVSP4 G002     1 Oba nedda, lwaki tokozesa nkola yonna eziyiza’kufuna obulwadde bwa mukenenya? If no, why?  (Circle all that apply) I don’t believe any of those methods I don’t like condoms My partner does not like condoms I cannot stay with one partner only I cannot abstain Other  Specify ……………………   1   2   3   4   5   77 HIVPY1 HIVPY2 HIVPY3 HIVPY4 HIVPY5 HIVPY77 HIVPYSP      HIVCOMB QUESTIONNAIRE  16  SECTION H: PREGNANCY and CHILD BIRTH- FEMALES AGED 18-55 ONLY For MALES go to section I. For females aged 55+ year , go to section J Screen Question  Response  Code H001 1 Wali ofunyeko olubuto? Have you ever been pregnant? If No(Go to H002, question 1)  Yes    1                                                  No     2   BINPRE  2 Walina emyaka emeka lwe wasokera ddala okufuna olubuto?  How old were you when you first got pregnant?  (list individual years)              Cannot remember Refused to answer (___)   88 99  AGEPRG   3 Mu myaka etaano egiyise, mirundi emeka gyewali obaddeko olubuto? How many times in the last five years have you been pregnant?     If None, (Go to H002, Question 1) None Once Twice Three times  Four times Five times Don’t know  99 1 2  3 4 5 88  NPREGT  4 Kakati ngenda kukubuza ebikwata kulubuto lwo olusembyeyo. Now I would like to ask some questions about your most recent birth   kumbuto ezisembyeyo wagenda awajanjabirwa okunywa edaggala? Now I would like to ask some questions about your most recent birth.  Yes No Don’t know 1 2 88 ANCP HIVCOMB QUESTIONNAIRE  17  Did you receive antenatal care for the pregnancy? If 2  ->(go to F001 Question 6)  5 Bakukebera akawuka akaleeta siriimu ngekimu ku kitundu ky’obujanjabi bw’olubuto? Were you tested for the AIDS virus as part of your antenatal care?  Yes No Don’t know 1 2 88 HIVRSLT   6  Bwoba tewagenda, nsonga ki eyakugaana okufuna obujanjabi? If No, what were the main reasons for not seeking ANC care?   Clinic too far for ANC Had no money  Had no time  Not aware had to attend  Did not want to attend.  Other  Specify………………………… Don't know  1 2 3 4 5 77   88  ANCPN      ANCPN77   H002 1 Okimanyi nti  kisoboka okuziyiza omwana okufuna akawuka ng’ akajja ku maama  Are you aware that MTCT can be prevented?  If No or don’t know skip to H003 question 1. Yes No Don’t know 1 2 88 MTCTP  2 Oba yee, kisoboka kuziyizibwa kitya?  If yes, how can it be prevented? (choose all that the participant mentions)          Family Planning  HCT ART during pregnancy and breastfeeding Delivering from a health facility Modified infant feeding Early infant diagnosis of HIV Other  Specify…………….. Don’t know 1 2 3 4 5 6 77  88  MTCPW HIVCOMB QUESTIONNAIRE  18     Section I: CIRCUMCISION (FOR MALES ONLY) Screen Question Response Variable code   I001       1 Oli mutayirire?  Are you circumcised? If yes (Go to Section j)  Yes No  1 2  CIRCUM  2 If No, Why aren’t you circumcised?  Lwaki toli mutayirire? (Circle all that apply) I fear being circumcised I am not at risk of HIV Circumcision services are too far There is no need I’m not interested I’ve never thought about it Religious reasons Other  Specify…………………………. 1 2 3 4 5 6 7 77  WHYNCIR1 WHYNCIR2 WHYNCIR3 WHYNCIR4 WHYNCIR5 WHYNCIR6 WHYNCIR7 WHYNCIR77 WHYNCIRSP H003 1 Omanyi wa mukitundu kino woyinza okugya enkola eyamba ku kuziyiza omwana okufuna akawuka nga akagya ku maama we? Do you know where to get PMTCT services? (probe for places where PMTCT services are offered)  Yes No Don’t know 1 2 88 MTCTW HIVCOMB QUESTIONNAIRE  19  I don’t know 88 WHYNCIR88  3 Osuubira okutayirirwa? Do you intend to get circumcised? If 2 OR 3,  ->(Go to  section J)  Yes No Not sure 1 2 3 CNCIRCUM I002    1 Oba nga osuubira, waliwo gyewali osindikid dwa gyebatayiririra?  Interviewer: If yes, has referral been  provided to a centre providing safe male medical circumcision?  Yes No  1 2  CIRCUMR SECTION J: BLOOD SAMPLE- instructions for the interviewer Screen Question Response  Variable code J001       1 Was consent obtained for taking blood for screening for HIV? Yes No  1 2 CONSBLD 2 If yes, circle the HIV rapid test on the laboratory request form Has HIV rapid test been circled on the laboratory request form?  Yes No  1 2 HIVRAPID J002       1 Was consent obtained for taking blood for storage and future use? Yes No  1 2 CONSBLDG 2 Has blood storage been Circled laboratory request form? Interviewer: If yes, Circle ‘plasma or serum reserved for storage’ on  the laboratory request form   Yes No  1 2  STORAGE  HIVCOMB QUESTIONNAIRE  20   (Olina ekibuuzo kyonna kyewalyagadde okumbuuza nga kikwata ku kunoonyereza kuno?)  Do you have any question (s) you would like to ask me about this study?  (Circle code)   Yes  = 1  No=2                                                          [AQN]  50 b) Write down the questions asked by the volunteer in the spaces provided i)……………………………………………………………………………................................................................... [AQN1] ii)…………………………………………………………………………..................................................................... [AQN2] ii)…………………………………………………………………………….................................................................. [AQN3] iv)……………………………………………………………………………................................................................. [AQN4]    

HIV Combination Prevention study - Data at months 0, 9 and 15

http://datacompass.lshtm.ac.uk/707/27/hivcomb_data_collection_form.pdf

HIV Combination Prevention study - Data at months 0, 9 and 15

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LSHTM Data Compass