Parents’ views on preparation to care for extremely premature infants at home.

Abstract

Aim: To gain insight into the post-discharge experiences of parents in relation to the adequacy of preparation for caring for their extremely premature infant at home. Method: A narrative approach was drawn on to facilitate data collection, via face-to-face semi-structured interviews, with fourteen parents of extremely premature infants. Findings: Constant comparative analysis was employed to allow the emergence of five key research themes: Emotional and mental health of parents; uncertain outcomes; on-going health needs of the baby; education needs of health professionals; parental support and preparation for transition home. Conclusion: Parental experience of being discharged home with a premature baby can be emotionally challenging necessitating a range of support mechanisms to assist them to cope with this period of transition