Gridley, Kate

Parker, Gillian Mary

White Rose Research Online

This is a repository copy of Life story work with people with dementia (poster).White Rose Research Online URL for this paper:https://eprints.whiterose.ac.uk/124694/Conference or Workshop Item:Parker, Gillian Mary orcid.org/0000-0002-2221-6748 and Gridley, Kate orcid.org/0000-0003-1488-4516 (2013) Life story work with people with dementia (poster). In: 8th UK Dementia Congress, 05-07 Nov 2013. eprints@whiterose.ac.ukhttps://eprints.whiterose.ac.uk/Reuse Items deposited in White Rose Research Online are protected by copyright, with all rights reserved unless indicated otherwise. They may be downloaded and/or printed for private study, or other acts as permitted by national copyright laws. The publisher or other rights holders may allow further reproduction and re-use of the full text version. This is indicated by the licence information on the White Rose Research Online record for the item. Takedown If you consider content in White Rose Research Online to be in breach of UK law, please notify us by emailing eprints@whiterose.ac.uk including the URL of the record and the reason for the withdrawal request. Life story work with people with dementia  Kate Gridley, Prof Gillian Parker, Nada Savitch, Joy Watkins,  Victoria Metcalfe, Polly Kaiser, Professor Yvonne Birks, Jean Tottie,  Dr Victoria Allgar, Dr Kate Baxter, Prof Esme Moniz-Cook Contact details Social Policy Research Unit  University of York Heslington York YO10 5DD   Telephone: 01904 321988 Email: kate.gridley@york.ac.uk Web: www.york.ac.uk/spru This poster features emerging findings from research funded by the National Institute for Health Research Health Services and Delivery Research Programme. The views and opinions expressed in the poster are those of the research team and do not necessarily reflect those of the HS&DR Programme, NIHR, NHS or the Department of Health   Evaluating life story work: development and initial feasibility study, July 2012 - Dec 2014  . Rationale  With current moves towards embedding life story work in dementia care, robust evaluation of the technique, its outcomes and costs, is urgently needed.  As a complex intervention, however, this must be preceded by a development and feasibility stage to improve our understanding of good practice and explore what outcomes might be achieved through life story work. We will then test the feasibility of different approaches to measuring these outcomes and the associated costs of doing life story work.   Research project   5 advisers with dementia (through Innovations in Dementia) SPRU consultation group   5 family carer advisers (through Uniting Carers) Project advisory group Expert advice: Outcomes: why do people do life story work?  o For themselves - for memory, identity, as a personal project o To share – to make/reaffirm connections and relationships, to support communication o To improve care – to inform staff, to improve understanding, to challenge assumptions 10 focus groups held spring 2013 (73 participants):  Four focus groups with 25 people with dementia   Three focus groups with 21 family carers    Three focus groups with 27 professionals with experience of life story work   Good practice learning: Workers who help people with life story work should: o Discuss how the  person would like their life story to be used (including who will see it) – this might affect what they choose to put in  o Get to know the person well – and share their own life experiences o Continue to support people with their life story work as life goes on Remember: not everyone likes to look back and not all memories are happy   Next steps for 2014: o National survey of dementia services and family carers  o Feasibility study to test ways of measuring costs and outcomes in care homes and hospitals 

Life story work with people with dementia (poster)

https://eprints.whiterose.ac.uk/124694/1/Life_Stories_poster_for_Dementia_Congress_2013_FINAL.pdf

Life story work with people with dementia (poster)

Abstract

Similar works

Full text

Available Versions

White Rose Research Online