Ghorayeb, J

Madill, A

Selinger, C

White Rose Research Online

This is a repository copy of PWE-008 Factors Associated with Voluntary Childlessness in Women with IBD.White Rose Research Online URL for this paper:http://eprints.whiterose.ac.uk/114515/Version: Accepted VersionArticle:Selinger, C, Ghorayeb, J and Madill, A (2016) PWE-008 Factors Associated with Voluntary Childlessness in Women with IBD. Gut, 65 (Suppl 1). A141-A141. ISSN 0017-5749 https://doi.org/10.1136/gutjnl-2016-312388.254© 2016, Published by the BMJ Publishing Group Limited. This is an author produced version of an abstract published in Gut. Uploaded in accordance with the publisher's self-archiving policy.eprints@whiterose.ac.ukhttps://eprints.whiterose.ac.uk/Reuse Unless indicated otherwise, fulltext items are protected by copyright with all rights reserved. The copyright exception in section 29 of the Copyright, Designs and Patents Act 1988 allows the making of a single copy solely for the purpose of non-commercial research or private study within the limits of fair dealing. The publisher or other rights-holder may allow further reproduction and re-use of this version - refer to the White Rose Research Online record for this item. Where records identify the publisher as the copyright holder, users can verify any specific terms of use on the publisher’s website. Takedown If you consider content in White Rose Research Online to be in breach of UK law, please notify us by emailing eprints@whiterose.ac.uk including the URL of the record and the reason for the withdrawal request. Selinger, C., Ghorayeb J., & Madill, A. (2016). Factors Associated with Voluntary Childlessness in Women with IBD. Gut, 65 (Suppl 1): A141.1-A141 Jun 2016.  PWE-008 10.1136/gutjnl-2016-312388.254  Introduction  Inflammatory Bowel Disease (IBD) affects many women of child bearing age, but requires complex decision making around pregnancy. While infertility is only slightly increased many women decide against having children. Voluntary childlessness (VC) rates exceed those of the general population by far. The reasons for VC remain incompletely understood.  Methods  Approximately 4300 female members of the patient organisation Crohn’s and Colitis UK aged 18–45 years were asked by email to complete an online questionnaire. Data collection included patient demographics, education, employment, marital status, and disease characteristics. Childlessness status and patient views were assessed as in the previous study by Marri (2007). Disease related pregnancy knowledge was recorded with the validated CCPKnow score.  Results  1324 women with mean age of 33 years completed the survey (response rate 31%). Of these 76% were in a long-term relationship and 87% were in employment or education. 776 (59%) suffered from Crohn’s disease (CD), 496 (38%) from ulcerative colitis (UC) and 4% from IBD-U. 40% had children [14% pre diagnosis (I); 26% post diagnosis (II)], 36% planned to have children at some stage (III), 7% reported fertility problems (IV) and 17% were classified as voluntarily childless (VC). 673 patients had sought medical advice about pregnancy and IBD. VC was associated with poorer disease-related knowledge (CCPKnow 5.98 vs 7.47 in (II); p < 0.001), older age (35 y vs 28 y in (II); p < 0.001), unemployment (9.7% VC; p < 0.001), being single (34.5% VC; p < 0.001, not seeking medical advice (p < 0.001), and diagnosis of CD (19.3% vs 13.9% UC; p = 0.015). Women with VC had more hospital admissions (mean 2.85 vs 2.17 (III); p = 0.03) and surgical interventions (mean 1.27 vs 0.65 (III); p < 0.001). Exposure with different types of IBD medication was not associated with VC. The main patient concerns were around inheritance (20.6%), inability to cope with a child (20.6%), and the influence of pregnancy on IBD (18%).  Conclusion  VC occurs frequently in women with IBD and appears to be multifactorial. Disease type and severity influence VC. Differences in disease burden could explain why VC is more common in CD than UC. Patients are mostly concerned regarding inheritability, disease course and the ability to cope with the added stress of being a mother.VC is associated with poor pregnancy specific knowledge and many women may stay childless unnecessarily. Patient education programs may help to reduce the rate of VC by correcting misconceptions and alleviating patient concerns.  Disclosure of Interest  C. Selinger Grant/research support from: Abbvie, Warner Chilcott, Consultant for: Abbvie, Warner Chilcott, Dr Falk, Takeda, Speaker bureau with: Abbvie, Warner Chilcott, MSD, Takeda, J. Ghorayeb: None Declared, A. Madill: None Declared 

PWE-008 Factors Associated with Voluntary Childlessness in Women with IBD

C Selinger

J Ghorayeb

A Madill

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PWE-008 Factors Associated with Voluntary Childlessness in Women with IBD

http://eprints.whiterose.ac.uk/114515/1/Selinger%2C%20C.%2C%20Ghorayeb%20J.%2C%20%26%20Madill%2C%20A.%20%282016%29.pdf

PWE-008 Factors Associated with Voluntary Childlessness in Women with IBD

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