Birtwistle, Jacqueline C

Catto, James W F

Edmondson, Amanda J.

Hiley, Vicky

Kelly, Phil

Muir, Delia

Oughton, Jamie

Twiddy, Maureen

University of Huddersfield Repository

University of Huddersfield RepositoryMuir, Delia, Catto, James W F, Twiddy, Maureen, Birtwistle, Jacqueline C, Edmondson, Amanda J., Kelly, Phil, Hiley, Vicky and Oughton, JamieWorking together to improve trial communicationOriginal CitationMuir, Delia, Catto, James W F, Twiddy, Maureen, Birtwistle, Jacqueline C, Edmondson, Amanda J., Kelly, Phil, Hiley, Vicky and Oughton, Jamie (2017) Working together to improve trial communication. In: Leeds CTRU 25 Year Celebrations, 15th June 2017, Leeds, UK. (Unpublished) This version is available at http://eprints.hud.ac.uk/32142/The University Repository is a digital collection of the research output of theUniversity, available on Open Access. Copyright and Moral Rights for the itemson this site are retained by the individual author and/or other copyright owners.Users may access full items free of charge; copies of full text items generallycan be reproduced, displayed or performed and given to third parties in anyformat or medium for personal research or study, educational or not­for­profitpurposes without prior permission or charge, provided:• The authors, title and full bibliographic details is credited in any copy;• A hyperlink and/or URL is included for the original metadata page; and• The content is not changed in any way.For more information, including our policy and submission procedure, pleasecontact the Repository Team at: E.mailbox@hud.ac.uk.http://eprints.hud.ac.uk/Delia MuirPatient and Public Involvement Officer d.p.muir@leeds.ac.uk0113 343 8609ContactThis poster presents independent research funded by the National Institute for Health Research, and Yorkshire Cancer Research (Ref. S388). The views expressed are those of the authors and not necessarily those of the NHS, the NIHR, the Department of Health or YCR. Working Together to Improve Trial CommunicationAuthors: Delia Muir, BRAVO: Prof Jim Catto, Maureen Twiddy, Jacqueline Birtwistle, Amanda Edmondson, Phil Kelly & the PPI advisory group, Vicky Hiley, Jamie Oughton. BackgroundIt’s common for patients to be part of developing participant information sheets. This is to help ensure that the sheets can be easily understood, and that they address people’s real concerns. Providing participants with clear written information is a vital part of obtaining informed consent. However there are many other factors which can effect someone’s decision to take part in a trial. Some LICTR study teams working with colleagues in LIHS have moved beyond information sheets and are considering the nuances of how information is verbally communicated during the recruitment process. Two cancer studies are currently looking at this issue: SABRTOOTH (Lung cancer) and BRAVO (Bladder cancer)Both of these studies include a surgical and a non-surgical arm. Previously, similar studies have faced recruitment challenges. Simulation Simulation can:• Provide experiential learning opportunities for recruiters.• Act as an engaging starting point for discussions between patients, researchers and clinicians. • Bring complex challenges to life in a safe environment.More evaluation is needed to see how this work impacts on recruitment and on the experience of staff and participants. LearningBoth studies have drawn on a technique called simulation. Simulation is a specialist form of role play. It has a long history within healthcare education and is increasingly being used within a research context. Simulated patients (role players) take on the part of potential research participants and their families. They then interact with real health professionals so that they can rehearse conversations about the study. This is followed by a structured debrief where the health professionals get feedback, reflect on their skills and try new approaches. SABRTOOTH and BRAVO both used simulation techniques in slightly different ways:Stills taken from the SABRTOOTH filmsSABRTOOTHCommunication issues were explored as part of the trial launch. Past patients spoke about how their diagnosis and treatment options were communicated to them. Simulated scenarios were developed by the Chief Investigator, with input from the study’s public contributor. Simulations and debriefs were filmed with real trial doctors and nurses.The films are available for sites to use with their staff. BRAVO Qualitative work was carried out with past patients to explore how their diagnosis and treatment options were discussed Those data formed the basis of simulated scenarios.The scenarios were further developed at a workshop with the study's public involvement group. Live simulations took place in small groups made up of clinical staff, researchers and patients.  The simulation sessions were part of broader trial education days at various sites. 

Working together to improve trial communication

Working together to improve trial communication

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University of Huddersfield Repository