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Primary Ciliary Dyskinesia: First Health-related Quality of Life Measures for Pediatric Patients
Authors
Adrianne Alpern
Laura Behan
+9 more
Sharon D. Dell
Thomas W. Ferkol
Audrey Dunn Galvin
Claire Hogg
Michael R. Knowles
Margaret W. Leigh
Jane S. Lucas
Anjana M. Morris
Alexandra L. Quittner
Publication date
1 January 2016
Publisher
Doi
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View
on
PubMed
Abstract
Rationale: Primary ciliary dyskinesia (PCD) is a rare disease. There are no available data on disease-specific pediatric patient–reported outcomes
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Last time updated on 23/04/2020