Coan, S

Fisher, P

Witty, K

Leeds Beckett Repository

Co-production and Mental Health: Patient Champions ‘Speak Back’ to PowerSusan Coan,  Leanne Winfield and Pamela FisherIRiS International Conference 2017: global perspectives on research co-production with communitiesUniversity of Birmingham14 -15 SeptemberFor the University For the communityWidening participation Access to education and trainingEnhancing student experience Informing student learningAccess to community knowledge Access to academic knowledgeResearch opportunities Research opportunitiesRelationship with researchparticipantsInforming research prioritiesResearch impact Evidence led service developmentVolunteering and placement oppsAccess to staff/studentresources Meeting Corporate Social ResponsibilitiesWorking towards shared goals –Greater sustainabilityCommunity Campus PartnershipsPrinciples of Co-production• Co-production as authentic power-sharing• Co-production requires a fundamental democratising of relationships• Co-production is connected to wider questions of citizenship• https://coproductionblog.wordpress.com/#Esrccopro Pamela.l.Fisher@Leedsbeckett.ac.uk“I am confident that the services I may use have been designed in partnership with people who have relevant lived experience.”Towards a culture change?NHS commissioners have had legal responsibilities to include service users in the design and delivery of services since 2012 (Health and Social Care Act, 2012)In 2016: The Five Year Forward View for Mental Health called for a culture change in mental health servicesEvery person with a mental health problem should be able to say:Progress through PartnershipIn a recent study by Rethink Mental Illness:Out of 94% (196 of 209) of CCGs that responded to the FOI request:• CCGs that had undertaken any co-production in mental health commissioning 15%• CCGs that said that they had an ambition to do more co-production8%• CCGs whose ambition for the future was in line with the 5YFVMH’s recommendation of adopting co-production as a standard 1%Co-production and RecoveryEmergent body of evidence that shows that co-production – the active involvement of people with lived experience of mental illness in service design – supports recovery and improved clinical outcomes (Slay and Stevens, 2013; McKeown, 2014; Nesta, 2012)What is Recovery?• Following emotional trauma (relationship break-up, major illness or bereavement) there is no returning to how you used to be• Coming to terms, learning and moving on• This is the same for recovery from mental illness• Recovery is about taking back control Patient Champion•What is a patient champion?•How Leanne became a patient champion•Background to clinical risk trainingCo-production and Clinical Risk Training• Patient champions called for co-production• A more holistic view of risk• Delivered to four cohorts of NHS, Adult Social Care and Voluntary Sector staff; one cohort of student mental health nurses• Leanne’s definition of co-productionConclusionCo-production requires genuine power-sharing and therefore a fundamental democratising of relationships between professionals and service users in mental health. Understood this way, co-production is more radical than shared decision-making which can leave power imbalances intact (Fisher and Lees, 2016). ReferencesFisher, P. and Lees, J. (2015) Narrative approaches in mental health: preserving the emancipatory tradition, Health Available at: http://hea.sagepub.com/content/early/recent: 1-17Health and Social Care Act (2014) Available at: http://www.legislation.gov.uk//ukpga/2012/7/pdfs/ukpga_201200007_en.pdfMcKeown, M. (2014) It’s the talk: A study of involvement initiatives in secure mental health settings, Health Expectations: an international journal of public participation in health care and policy 19 (3): 570-79.McKnight, J. and Block, P. (2010)The Abundant Community. San Francisco: Berrett-KoehlerNesta (2012) People powered co-production. Available at http://www.nesta.org.uk/sites/default/files/co-production_catalogue.pdfRethink Mental Illness (2016) Co-production in mental health. Available at: https://www.rethink.org/cooperation.

Co-production and Mental Health: Patient Champions ‘Speak Back’ to Power

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