Careyva, Beth, MD

Change, Jerry, BS

Curtis, Charity, MPH

Johnson, Melanie B, MPA

Kurt, Anita, PhD, RN

Liu, Henry, MD

Santiago, Claudia P., BA

Stello, Brian, MD

Straubinger, Kathleen, RN, BSN

Winter, Alex, BS

York, Wendy H., BS, MA

English

Lehigh Valley Health Network: LVHN Scholarly Works

Lehigh Valley Health NetworkLVHN Scholarly WorksDepartment of Family MedicineDisparities in Clinical Research Participation:Motivators, Barriers and Facilitators of PrimaryCare PatientsAnita Kurt PhD, RNLehigh Valley Health Network, Anita.Kurt@lvhn.orgCharity Curtis MPHLehigh Valley Health NetworkMelanie B. Johnson MPALehigh Valley Health Network, Melanie_B.Johnson@lvhn.orgHenry Liu MDLehigh Valley Health Network, Henry.Liu@lvhn.orgBeth Careyva MDLehigh Valley Health Network, beth_a.careyva@lvhn.orgSee next page for additional authorsFollow this and additional works at: https://scholarlyworks.lvhn.org/family-medicinePart of the Medical Specialties CommonsThis Poster is brought to you for free and open access by LVHN Scholarly Works. It has been accepted for inclusion in LVHN Scholarly Works by anauthorized administrator. For more information, please contact LibraryServices@lvhn.org.Published In/Presented AtKurt, A., Curtis, C., Johnson, M., Liu, H., Careyva, B., Chang, J., Winter, A., Santiago, C., York, W., Straubinger, K., Stello, B. (2015,October 24). Disparities in Clinical Research Participation: Motivators, Barriers and Facilitators of Primary Care Patients. Poster presentedat: North American Primary Care Research Group, Cancun, Mexico.AuthorsAnita Kurt PhD, RN; Charity Curtis MPH; Melanie B. Johnson MPA; Henry Liu MD; Beth Careyva MD;Jerry Change BS; Alex Winter BS; Claudia P. Santiago BA; Wendy H. York BS, MA; Kathleen Straubinger RN,BSN; and Brian Stello MDThis poster is available at LVHN Scholarly Works: https://scholarlyworks.lvhn.org/family-medicine/272Lehigh Valley Health Network, Allentown, PennsylvaniaDisparities in Clinical Research Participation: Motivators, Barriers and Facilitators of Primary Care PatientsAnita Kurt PhD RN, Charity Curtis MPH, Melanie B. Johnson MPA, Henry Liu MD, Beth A. Careyva MD, Jerry Chang BS, Alex Winter BS, Claudia P. Santiago BA, Wendy H. York BS MA, Kathleen Straubinger RN BSN, Brian Stello MD BackgroundEnrollment in research is challenging in almost all areas of medicine, and certainly those challenges increase when we attempt to recruit participants that reflect our community’s diverse demographics.  Studies show: •  African American and Hispanic women participate in lesser numbers than Caucasian women.  •  Spanish speaking women reportedly participate less than English speaking women.    •  As we add race and language as variables, not only do non-Caucasian and non-English speaking women participate in lesser numbers, but also their male counterparts have low representation in research.  © 2015 Lehigh Valley Health NetworkAcknowledgements:This study is grant funded by the Anne and Carl Anderson Trust.Motivators to Research ParticipationObjective •  To identify factors that influence primary care patients’ participation in clinical research. Methods •  A validated, anonymous 44- question IRB approved survey in four primary care practices. •  Offered in English, Spanish, Traditional Chinese and Simplified Chinese. •  Autonomous patients >/=18 years of age Participants •  N= 432 •  70% female •  91% had participated in prior clinical researchResults•  No association was found between prior research participation and education levels, nor an association between income distribution and prior participation.  •  Patients would be more likely to participate if additional resources were made available, particularly written materials in native language.•  Minority respondents are open to social support resources such as a participant mentor or support group setting.•  Time and follow-up are barriers.•  Financial incentive is not a motivator in participation.Discussion•  Know your community •  Expand resources to accommodate and encourage participation beyond English-speaking subjects•  Foster new strategies to strengthen the communication loop with physicians, patients and families when providing education on research opportunities and participation.Barriers to Research ParticipationResources Aiding in Decision-Making

Disparities in Clinical Research Participation: Motivators, Barriers and Facilitators of Primary Care Patients

https://scholarlyworks.lvhn.org/cgi/viewcontent.cgi?article=1281&context=family-medicine

Disparities in Clinical Research Participation: Motivators, Barriers and Facilitators of Primary Care Patients

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