23andMe and YOU: What Can You Learn from Your Genome (and Do You Really Want to Know?)

Abstract

The last decade has seen a sharp rise in “direct-to-consumer” genetic testing, allowing anyone (and their dogs!) the opportunity to sequence their genome. Depending on the company and product you choose, you can explore your ancestry and ethnicity or identify risk factors for specific diseases. However, concerns have been raised about the privacy and security of collected data, the accuracy of disease-risk analysis and the ethics of revealing these data in the absence of expert genetic counseling. In this workshop, we will describe the types of information that an exploration of your genome can reveal, then discuss the social, ethical, legal and personal ramifications of having access to our genetic data

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