Chakurian, Daphne

English

University of Missouri: MOspace

Family Caregiver Perceptions of Social Interactions of Persons with Autism Spectrum Disorder•1 in 54 children has Autism Spectrum Disorder (ASD)•ASD is a lifelong neurodevelopmental disorder characterized by challenges in communication and social interaction•Parenting a child with ASD is associated with high stress, depression, anxiety, and reduced quality of life•Social support is protective against stress, anxiety, and depression•Research Question: How do family caregivers of persons withASD experiencing behavioral and/orpsychological challenges perceive socialinteractions within the family and in thecommunity? • Positive social support appeared to contribute to family caregivers' perception of family functioning • Findings of affiliate /courtesy stigmatization related to behaviors like vocalizations and meltdowns confirms the extant literature • Future research to understand middle and older adult family caregiver’s stigmatization may inform design of tailored intervention programs and catalyze public funding to prevent social isolation and loneliness • Limitations of study: convenience sample, single case study, and non-diverse sample•Basic qualitative case study methodology •Sample: single family caregiver to a person with ASD•Setting: Suburban community dwelling family in Northern California•Data collection: single semi-structured interview protocol, 7-day journal of social interactions, field notes•Data analysis: 6 phase Thematic analysis (Braun & Clarke)•Theoretical framework: Sense of Coherence•Institutional Review Board: Approval #2020081 MU, application #260202, University of MissouriScan to follow me on ResearchGate:Scan to view references for this study:Walking this Journey is Learning and Growing• Celebrating milestone or little victory with joy• Patience with many roles and losses • Experiencing stigma, and shameKeeping the World Open is Managing• New experiences• Family bonds• Hope for the futureWitnessing his Challenges is Observing• Communication challenges• Self-harm• Public meltdownsFinancial disclosure:Charles and Josie Sinclair Education Fellowship at University of MissouriAcknowledgements:Thank you to my advisor, Dr. Lori Popejoy for support and guidance.Daphne Chakurian, PhD(c), BSN, RN, PHN, CCMWalking this Journey Keeping the World OpenWitnessing his ChallengesMy ChildDiscussionResultsMethodIntroductionCollaboration and NetworkingThematic Map of a Family Caregiver’s Experiences and Meanings 

Family caregiver perceptions of social interactions of persons with autism : [poster]

https://mospace.umsystem.edu/xmlui/bitstream/10355/89701/4/Chakurian_Family%20CG%20perceptions%20of%20social%20interactions%20of%20persons%20with%20autism%20spectrum%20disorder_WIN_FINAL.pdf

Family caregiver perceptions of social interactions of persons with autism : [poster]

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University of Missouri: MOspace