Halkoaho, Arja

English

UEF Electronic Publications

(http://conventions.coe.int/Treaty/en/Treaties/html/164.htm). (14.12.2011) Constitution of Finland (731/1999). http://www.finlex.fi/en/laki/kaannokset/1999/en19990731.pdf (14.12.2011) Crepeau

2007.Combining individual interviews and focus groups to enhance data richness.

A brief historical and theoretical perspective on patient autonomy and medical decision making: Part II: The Autonomy Model.

A comprehensive ethical framework for responsibly designing and conducting pharmacologic research that involves pregnant women.

A factor analytic study of midwives` attitudes to research.

A Phased consent policy for cord blood donation.

A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes. Patient Educ Couns.

A qualitative study exploring practice nurses´experience of participating in a primary care based randomized controlled trial.

A questionnaire-based survey of participants' decisions regarding recruitment and retention in a randomised controlled trial - lessons learnt from the SCoRD trial.

A short communication course for physicians improves the quality of patient information in a clinical trial.

A study of public opinion on the use of tissue samples from living subjects for clinical research.

A study to evaluate the effect of investigator attendance on the efficiency of IRB review.

A trial of consent procedures for future research with clinically derived biological samples.

a. Evaluation of Participant Comprehension of Information Received in an Exercise and diet intervention Trial: The DR´s EXTRA Study.

Acceptability and Profile of the Clinical Drug Trials Underway in Finnish University Hospitals in the 1990s: Applications Reviewed by Ethics Committees. Methods Find Exp Clin Pharmacol.

Aflatoxin B1 transfer and metabolism in human placenta.

An exploration of factors which constrain nurses from research participation.

An exploration of midwives` attitudes to research and perceived barriers to research utilisation.

Analysis of informed consent document utilization in a minimal-risk genetic study.

Are good intentions good enough? Informed consent without trained interpreters.

aspects of genetic predisposition to environmentallyrelated disease. Sci Total Environ.

Assessing the Ethics of Medical Research in Emergency Settings: How Do International Regulations Work in Practice?

Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns.

Attitudes towards transfers of human tissue samples across borders: An international survey of researchers and policy makers in five countries.

Balancing Justice and Autonomy in Clinical Research With Healthy Volunteers. Clin Pharmacol Ther.

Basic ethical principles in European bioethics and biolaw: Autonomy, dignity, integrity and vulnerability – towards a foundation of bioethics and biolaw. Med Health Care Philos.

Beyond informed consent.

Biobanking and deceased persons.

Biobanks: simplifying consent.

Bioethical consideration on medical research using human tissues: the researcher´ viewpoint.

Bioethics and “Human Dignity”.

Bioethics in theory and practice.

Bioethics, vulnerability, and protection.

Biomedical Scientists´ Perceptions of Ethical and Social Implications: Is there a Role for Research Ethics Consultation? Plos One 4,

Biopankkitutkimus Suomessa – missä mennään?

Bridging consent: from toll bridges to lift bridges.

Broad consent – the only option for population genetic databases? Blood and Data. Ethical, legal and social aspects of human genetic databases. Edited by Árnason

Broad consent, exceptions to consent and question of using biological samples for research purposes different from initial collection purpose.

Broadening consent and diluting ethics?

Burgio FL.2002. Ethics of placental blood collection and storage.

Can research and care be ethically integrated?

Cancer as Rubbish: donation of Tumor Tissue for Research. Qual Health Res.

Carbamazepine and its metabolites in human perfused placenta and in maternal and cord blood.

Changing defaults in biobank research could save lives too.

Changing perspectives in biobank research. From individual rights to concerns about public health regarding the return of results.

Clinicians´ knowledge of informed consent.

Comission 2010. European textbook on Ethics in Research. Studies and Reports. http://www.eurosfaire.prd.fr/7pc/doc/1292233423_textbook_on_ethics_report_en.pdf (14.12.2011) Everett

Consent for biobanking: Assessing the Understanding and Views of Cancer patients.

Consent gained from patients after breast surgery for the use of surplus tissue in research: an exploration.

Consent practices and biomedical knowledge production in tissue economies. Academic dissertation.

Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.

Cross Cultural Principles for Bioethics. Pages 207- 214. Advanced Biomedical Engineering. Edited by: Gaetano

Culture and in vitro hepatogenic differentiation of placenta-derived stem cells, using placental extract as an alternative to serum.

Current functions of Italian ethics committees: a cross-sectional study.

Death, Dignity and Moral Nonsense.

Determining the common morality´s norms in the sixth edition of Principles of Biomedical Ethics.

Dexamethasone stimulates placental system A transport and trophoblast differentiation in term villous explants.

Dignity is a useless concept.

Dignity: not such a useless concept.

DNA-näytteet epidemiologisissa tutkimuksissa.

Do we need a wider view of autonomy in epidemiological research?

Early life experiences and their impact on our understanding of depression.

Eettiset toimikunnat ja niiden toiminnan laatu. Sosiaali- ja terveysjohtamisen MBA-kehittämistyö. Tampereen yliopisto. Tampereen teknillinen yliopisto. In Finnish.

Efficiency of Scientific Communication: A Survey of World Science.

Empirical investigation of the ethical reasoning of physicians and molecular biologists – the importance of the four principles of biomedical ethics.

Essentials of Nursing Research, Methods, Appraisal and Utilization. Sixth Edition. Lippincott Williams

Etene-julkaisuja 16. TUKIJA 2002-2006. Etene/Lääketieteellinen tutkimuseettinen jaosto. Valtakunnallinen terveydenhuollon eettinen neuvottelukunta(ETENE). Sosiaali- ja terveysministeriö.

Ethical and legal issues in research involving human subjects: do you want a piece of me?

Ethical aspects of molecular epidemiology of cancer.

Ethical issues in the collection, storage and research use of human biological material.

Ethical Principles and Guidelines for the protection of human subjects of research http://ohsr.od.nih.gov/guidelines/belmont.html (25.8.2011).

Ethical ramifications of alternative means of recruiting research participants from cancer registries.

Ethics and data protection in human biomarker studies. ECNIS. http://www.ecnis.org/images/stories/ecnis/documents/reports/Ethics_and_data_protection/ ethics_and_data_protection.pdf (14.12.2011) Chwang E.

Ethics as an Act of Listening.

Ethics in studies on children and environmental health.

Ethics takes time, but not that long.

European Comission. http://ec.europa.eu/public_opinion/archives/eb_special_en.htm (31.12.2011) Spence D.

European values in bioethics: Why, what and how to be used?

Evaluating DNA methylation and gene expression variability in the human term placenta.

Evaluating the risks of clinical research.

Evaluating the therapeutic Misconception.

Evaluation of informed consent: a pilot study.

Evaluationg the Effects That Existing Instructions on Responsible Conduct of Research Has on Ethical Decision Making.

Evolving values in ethics and global health research.

Examining the public refusal to consent to DNA biobanking: empirical data from a Swedish population-based study.

Examining the Suitability of the Principle of Subsidiarity for bioethics.

Experimental methods to study human transplacental exposure to genotoxic agents. Mutat Res.

Fairness and Membership in a Class: conceptual Confusions and Moral Puzzles in the Regulation of Human Subjects Research.

Feminist intersectionality: Bringing social justice to health disparities research.

Finnish nurses´ views on their research activities,

Finnish nurses´attitudes toward nursing research and related factors.

Finnish people’s attitudes towards biomedical research and its sponsorship.

Focus group. In: Bourgeault I, Dingwall R, de Vries R.editors.

Focus on research methods. Real Qualitative Researchers Do not count: The use of numbers in Qualitative Research.

for the Consortium to Examine Clinical Research Ethics.

for the ProtecT Study Group.

From Mexico to Mali: a new course for global health.

Gender and ethics committees: where’s the different voice?

Gender equality in the work of local research ethics committees in Europe: a study of practice in five countries.

Good researcher, poor midwife: an investigation into the impact of central trait description on assumptions of professional competencies.

Ethical aspects of human tissue research views of the stakeholders

http://epublications.uef.fi/pub/urn_isbn_978-952-61-0717-2/urn_isbn_978-952-61-0717-2.pdf

Ethical aspects of human tissue research views of the stakeholders

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