Boström, C.

Coenen, Michaela

Dür, M.

Fialka-Moser, V.

Kautzky-Willer, A.

Kjeken, I.

Mattsson, M.

Smolen, J.

Stamm, T.

English

Universität München: Elektronischen Publikationen

894 Scientific Abstracts
AB0273 PERSONAL FACTORS IMPORTANT TO PEOPLE WITH
RHEUMATOID ARTHRITIS AND THEIR COVERAGE BY
PATIENT-REPORTED OUTCOME MEASURES
M. Dür 1, M. Coenen 2, V. Fialka-Moser 3, A. Kautzky-Willer 3, I. Kjeken 4,
M. Mattsson 5, C. Boström 6, J. Smolen 1, T. Stamm 1. 1Internal Medicine III,
Division of Rheumatology, Medical University of Vienna, Vienna, Austria;
2Ludwig-Maximilians-University, Munich, Germany; 3Medical University of
Vienna, Vienna, Austria; 4Diakonhjemmet Hospital, Oslo, Norway; 5Luleå
University of Technology, Luleå; 6Karolinska Institutet, Stockholm, Sweden
Background: There is an increasing call to use patient reported outcome
measures (PROMs) in health outcome research, because the perspective of
patients is an essential part concerning the end results of health care. The
coverage of patients’ perspective by PROMs relevant in rheumatoid arthritis (RA)
has been examined regarding all domains of the International Classification of
Functioning, Disability and Health (ICF) except personal factors (PFs). Since the
ICF did not classify PF, some researchers attempted to provide a classification of
the PFs.
Objectives: We aimed to identify themes meaningful to people with RA, to
determine which of these were attributed to PFs previously and to explore their
coverage by PROMs.
Methods: We explored life stories to identify themes meaningful to people with
RA and determined whether they have been previously attributed to PFs in the
existing literature. Additionally we conducted a systematic literature search to
identify PROMs relevant in RA. Finally, we explored whether the identified PROMs
cover those themes which were attributed PFs previously.
Results: Twenty-two themes were found to be meaningful to 15 people with RA,
of which 13 were attributed to PFs previously. Five themes were linked to activity
and participation or environmental factors and four were not covered by the
ICF. The systematic literature search resulted in the identification of 33 PROMs.
Of these, the London Coping with Rheumatoid Arthritis Questionnaire and the
Rheumatoid Arthritis Self-Efficacy Questionnaire covered most PFs. Examples of
the coverage of themes attributed to PFs by PROMs are depicted at the Table 1.
Table 1. Examples of the coverage of themes attributed to PFs by PROMs
Themes ASES GSES LCRAQ RASE WOC-R
Coping + + + + +
Involvement into disease management + + +
Optimistic reflection + + + +
Resilience + + + +
Self-efficacy + + + + +
Conclusions: The findings provide information about which PFs are meaningful
to people with RA and could thus be targeted in non-pharmaceutical interventions.
To our knowledge this was the first study exploring the coverage of PFs by PROMs
relevant in RA. The exploration of the PROMs can support clinicians and other
health professionals with the choice of which PROMs to use when developing or
evaluating the effect of their interventions.
Disclosure of Interest: None declared
DOI: 10.1136/annrheumdis-2014-eular.3154


Personal Factors Important to People with Rheumatoid Arthritis and their Coverage by Patient-Reported Outcome Measures

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Personal Factors Important to People with Rheumatoid Arthritis and their Coverage by Patient-Reported Outcome Measures

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