A presentation pertaining to the L&M Policy Research which addresses the growing need among federal state and policymakers and stakeholders for comprehensive information regarding available resources for individuals with an autism spectrum disorder

Center for Medicaid & Chip Services

Center for Medicare & Medicaid Services

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  State of the States of Services & Supports for People with Autism Spectrum Disorders Disabled and Elderly Health Programs Group Center for Medicaid and CHIP Services  July 8, 2014 Background • CMS contracted with L&M Policy Research in 2009 to address the growing need among federal and state policymakers and stakeholders for comprehensive information regarding available resources for individuals with an autism spectrum disorder (ASD) • The ASD state of the states study supported 2010 and 2011 Interagency Autism Coordinating Committee’s strategic plan objectives    134  Study Goal  • Collect information on existing state and federal programs and supports for individuals and families living with ASD in 50 states and the District of Columbia  • Develop comprehensive, state-specific summaries of available programs and supports 135  Target Audience The ASD state of the states report is intended to inform: • Individuals with ASD and their families • Advocates • State policy makers • Federal policy makers • Research community  136 Data Collection  • 2012-2013 study period • L&M interviewed state level staff crucial to the implementation of policy and programs supporting families living with ASD • L&M reviewed publicly available resources from local advocacy organizations and state programs       137 Guiding Questions  • What are states and/or local government doing to provide services for people with ASD? • What are the types of services and supports that a person with ASD can access? • How are these supports and services funded? 138 State Profile Contents • Interview approach • State bills & legislation • State insurance regulations • Medicaid Home and Community-Based Service (HCBS) programs • State services and supports • Early Intervention • School aged children • Adults   139 State Profile Contents (con’t.) • Systems Tracking • Transitions and Coordination of Services – Early intervention to school – School aged to employment • Training for direct service support workforce • Corrections • Long-term plans to expand supports and services 140 Service/Support Gaps • ASD specific services for adults • Options for individuals on program waiting lists • Provider availability and access • Supports for seamless transitions • Best practices across the lifespan • Insurance mandate barriers 141 Potential Report Uses • Identify promising state policies and programs impacting individuals with ASD and their support systems • Pinpoint service and/or support gaps  • Compare type and scope of services and supports available across states • Identify opportunities to improve coordination across state systems of care    142 Access Report The Autism Spectrum Disorders (ASD): State of the States of Services and Supports for People with ASD is available on-line at: http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Long-Term-Services-and-Supports/Downloads/ASD-State-of-the-States-Report.pdf  143 Report Questions    Sonya Bowen Sonya.Bowen@cms.hhs.gov 144 

State of the States of Services & Supports for People with Autism Spectrum Disorders

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