How people with dementia and their carers access research findings and make practical use of them in their everyday lives

Abstract

This presentation considers the dissemination and implementation of dementia research, with particular reference to how people with dementia and their carers access research findings and make practical use of them in their everyday lives. This is an issue which receives limited coverage in the literature. Although there is a growing body of research identifying evidence-based interventions for people with dementia and for their carers, it remains unclear how effectively this research knowledge is disseminated and implemented beyond the systems responsible for the delivery of dementia care. Whilst the emergence of knowledge mobilisation and developments within the discipline of implementation science are informing current thinking about how research can better inform public policy and professional practice, a broader focus is also needed on how this knowledge reaches more diverse public audiences. Drawing upon relevant literature and recent experience of developing a dissemination strategy for a UK dementia study, this presentation considers how people with dementia and their carers access research knowledge, assess its value to them and apply it. In light of this, researcher responsibilities in delivering an effective dissemination strategy that is empowering for this population are also explored. Whilst it is acknowledged that dissemination strategies may be influenced by the nature of the research, the intended audience, the priorities of the researcher or the expectations of funding bodies, alternative ways of ensuring the inclusion of people with dementia and their carers in this critical aspect of the research process are considered. Finally, recommendations are made concerning future research into this key issue, so that opportunities for people with dementia and their carers to benefit from the evidence-based practices that are potentially useful to them can be maximised