RD-Connect ID-Cards of biobanks and registries- making RD data FAIR.pptx

Abstract

<p>The RD-Connect ID-Cards (http://catalogue.rd-connect.eu) aims at concentrating sparse information on RD patients in one unique source by showing the number of samples/cases included in biobanks and registries, providing a first gateway towards more intense data sharing, and increasing the integration of biobanks and registries.<br></p