Polish translation and cross-cultural adaptation of the Caregiver Priorities and Child Health Index of Life with Disabilities questionnaire.

Abstract

Matuszczak Ewa, Zielinska-Turek Justyna, Debek Wojciech, Komarowska Marta, Muszyńska-Roslan Katarzyna, Wojnar Jerzy Andrzej, Hermanowicz Adam. Polish translation and cross-cultural adaptation of the Caregiver Priorities and Child Health Index of Life with Disabilities questionnaire. Journal of Education, Health and Sport. 2017;7(6):492-500. eISSN 2391-8306. DOI http://dx.doi.org/10.5281/zenodo.821726 http://ojs.ukw.edu.pl/index.php/johs/article/view/4573 The journal has had 7 points in Ministry of Science and Higher Education parametric evaluation. Part B item 1223 (26.01.2017). 1223 Journal of Education, Health and Sport eISSN 2391-8306 7 © The Author 2017; This article is published with open access at Licensee Open Journal Systems of Kazimierz Wielki University in Bydgoszcz, Poland Open Access. This article is distributed under the terms of the Creative Commons Attribution Noncommercial License which permits any noncommercial use, distribution, and reproduction in any medium, provided the original author(s) and source are credited. This is an open access article licensed under the terms of the Creative Commons Attribution Non Commercial License (http://creativecommons.org/licenses/by-nc/4.0/) which permits unrestricted, non commercial use, distribution and reproduction in any medium, provided the work is properly cited. This is an open access article licensed under the terms of the Creative Commons Attribution Non Commercial License (http://creativecommons.org/licenses/by-nc/4.0/) which permits unrestricted, non commercial use, distribution and reproduction in any medium, provided the work is properly cited. The authors declare that there is no conflict of interests regarding the publication of this paper. Received: 03.06.2017. Revised: 20.06.2017. Accepted: 30.06.2017. Polish translation and cross-cultural adaptation of the Caregiver Priorities and Child Health Index of Life with Disabilities questionnaire Ewa Matuszczak1, Justyna Zielinska-Turek2, Wojciech Debek1, Marta Komarowska1, Katarzyna Muszyńska-Roslan3, Jerzy Andrzej Wojnar4, Adam Hermanowicz1 1. Department of Pediatric Surgery Medical University of Bialystok, Bialystok, Poland 2. Department of Neurology, Medical University of Bialystok, Bialystok, Poland 3. Department of Pediatric Oncology, Medical University of Bialystok, Bialystok, Poland 4. Department of Orthopaedics and Traumatology, Medical University of Bialystok, Bialystok, Poland Corresponding author: Adam Hermanowicz Assoc Prof. Pediatric Surgery Department Medical University of Bialystok, Poland [email protected] Abstract: The aim of this study was to translate and adapt the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) questionnaire into the Polish language, and to test the reliability and validity of CPCHILD scores of children with cerebral palsy (CP). Methods: This study consisted of two parts: the translation and transcultural adaptation of the English version of the CPCHILD into Polish language and the validity testing of the Polish version of the CPCHILD. Patients: Parents of non-ambulatory children with CP aged between 5 and 18 years. All of the 25 children with cerebral palsy were classified using the Gross Motor Function Classification System as level V. Results: The Polish version of CPCHILD yielded similar test-retest reliability and score distributions across the GMFCS level as the original version. The best correlations were observed for domains that are close to the functional deficits. Conclusion: This study shows that the Polish version of CPCHILD, the same as English version, is a disease specific measure of the caregivers’ perspective, is reliable and internally consistent, and can be reliably used to evaluate the health-related quality of life in Polish patients with CP from the caregivers’ perspective. Key words: Caregiver Priorities and Child Health Index of Life with Disabilities, transcultural adaptation, validatio