Festen, Jan

Lammers, Ernst

Linssen, Cilia

Postmus, Pieter E.

Schook, Romane M.

The, Anne-Mei

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Copyright © 2007 by the International Association for the Study of Lung Cancer S847
Journal of Thoracic Oncology • Volume 2, Number 8, Supplement 4, August 2007  12th World Conference on Lung Cancer
cer care services implemented together show more positive outcome. 
Initially basic cost like food, training materials, posters etc were borne 
by donations from local temples & well wishers. I have been doing 
this work with guidance from my NGO colleagues as my returns to the 
society. This strategy has minimum maintenance cost & high accept-
ability. Health policy planners & forums like IASLC should workout a 
plan for NGO’s role in control of lung cancer in developing nations.
Conclusion: Economical factors & accesss to therapy changes mode of 
treatment. With little or no funding our community NGO in rural/tribal 
India formed a well knit volunteers group who is giving parttime 
dedicated service for poor cancer affected patients. Promoting dialogue 
between NGO’s accelerates cancer-care programs. Community partici-
pation increases more acceptance. This would reduce difﬁculties faces 
by resource poor southern countries. We need uniform policy to imple-
ment & expand these cost-cutting measures to include a broader range 
of anticancer products. 
P1-271 Supportive Care/QOL Posters, Mon, Sept 3 
Japanese multidisciplinary medical care guideline for patients with 
lung cancer by non-profit organization of multi-institutional study 
group (WJTOG)
Sawa, Toshiyuki1 Eguchi, Kenji2 Ishiguro, Takashi1 Senba, Hiroshi3 
Saka, Hideo4 Tada, Hirohito5 Ichinose, Yukito6 Katagami, Nobuyuki7 
Matui, Kaoru8 Nakamura, Shinichiro9 
1 Gifu Municipal Hospital, Gifu, Japan 2 Tokai University, Sagamiwara, 
Japan 3 Kumamoto Regional Medical Center, Kumamoto, Japan 4 Na-
tional Nagoya Medical Center, Nagoya, Japan 5 Osaka General Medi-
cal Center, Osaka, Japan 6 National Kyushu Cancer Center, Fukuoka, 
Japan 7 Kobe City General Hospital, Kobe, Japan 8 Osaka Prefectural 
Respiratory and Allergy Medical Center, Habikino, Japan 9 West Japan 
Thoracic Oncology Group, Osaka, Japan 
Purpose: The mission of west Japan thoracic oncology group (WJ-
TOG) are to support and carry out multi-institutional clinical study 
and to inform necessity and importance of clinical study to everyone 
of common society, consequently to contribute to an increase of proﬁt 
of the whole society. We provided citizen open lectures and informa-
tion offer by the web-site (www.wjtog.org) for commonality as patient 
advocacy for this purpose.
This time, we planned multidisciplinary guideline making not for 
oncologists, but for the patients who were diseased in lung cancer as 
means of further information.
Method: The board of directors determined this plan as an enterprise 
in 2006, and guideline editor Ôs committee discussed constitution, 
drafting / a plan / writing edited guideline for patients since January 
2006 according to the plan. Planned guideline followed the guideline 
by Japanese society of lung cancer lung, and added hospital choice, 
informed consent, second opinion, mental care, palliative care, comple-
mentary alternative medicine, nursing, signiﬁcance of clinical study to 
patient.
Results: I planned a booklet of 100 pages as manual plain at ﬁrst fol-
lowing NCCN guideline, but the ﬁnal program was changed a book 
of collar 250 pages which is consist of 134 questions and answers, 
because similar guidebook of another cancer adopt Q & A style, and 
most of patients with lung cancer are desirable illustrated contents 
because of their great age. We made 13000 parts currently and supplied 
free distribution through hospitals and institutions, which participate 
WJTOG, as well as web-site free download.
Conclusion: Some new medicines for lung cancer were released, and 
on this account, during one year when we worked this project, contents 
of the guideline were not the latest. WJTOG is examining a revised edi-
tion as an enterprise in next year.
P1-272 Supportive Care/QOL Posters, Mon, Sept 3 
A website on lung cancer, who are the users and what are they 
looking for?
Linssen, Cilia1 Schook, Romane M.2 The, Anne-Mei3 Lammers, Ernst4 
Festen, Jan1 Postmus, Pieter E.2 
1 Lung Cancer Information Center, Baarn, The Netherlands 2 Depart-
ment of Pulmonary Diseases, VU University Medical Center, Amster-
dam, The Netherlands 3 EMGO Institute, VU University Medical Center 
Amsterdam, Amsterdam, The Netherlands 4 Gelre Hospitals, Zutphen, 
The Netherlands 
Background: The Dutch Lung Cancer Information Centre has 
launched the website www.longkanker.info in November 2003. The 
purpose of this abstract is to describe the launching of the website, its 
development and type of visitors of the website, what they were look-
ing for and if they found what they requested. 
Methods: Supervised by a panel (pulmonologists, patients, com-
munication specialists), a large amount of material about lung cancer 
has been collected and edited into accessible language by health care 
providers and the website has been divided into special categories 
following the different stages lung cancer patients, relatives and health 
care providers go through during the illness. The website is being 
updated regularly.
Search engines have been used to check the position of the website as a 
“hit”. Pulmonologists have been informed about the foundation of the 
website and all lung cancer outpatient clinics in the Netherlands have 
received posters, folders and cards to inform their patients.
Visitor numbers, page views, visitor numbers per page view have been 
registered continuously. “visitor satisfaction polls” have been placed in 
the second half of 2004 and the second half of 2005.
Results: The website appeared as ﬁrst hit when using search engines 
immediately after launching it. Half of the visitors came to the website 
via search engines or links found at other sites. The number of visitors 
started at 4600 in the ﬁrst month to double in the next months and 
reached 18.000 per month 2 years after launching. The number of 
visited pages rose to 87.000 per month with an average number of 5 
pages per visitor. 30% of the visitors returns within the same month. 
The most popular pages are interactive pages with the overview of all 
questions “ask the doctor” at the top with forum messages, survival 
ﬁgures of all lung cancer forms and information about the disease. The 
ﬁrst satisfaction poll obtained 650 respondents and the second 382. The 
visitors attending the website are caregivers (57%), patients (8%) and 
other (students, people fearing lung cancer). 89% of the visitors found 
what they were looking for and the satisfaction is the highest among 
nurses and caregivers (91 and 95%) and the lowest among physicians 
and patients (85 and 83%).
Conclusions: Given the number of visitors of the lung cancer website, 
it can be concluded that there is a large need for additional information 
among patients and caregivers. The launched website www.longkanker.
info has reached its goal of providing a dependable source about lung 
cancer and satisfying its visitors.


P1-272: A website on lung cancer, who are the users and what are they looking for? 

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P1-272: A website on lung cancer, who are the users and what are they looking for?

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