Berdal, A

Boy-Lefèvre, M-L

de la Dure, M

Razanamihaja, N

Toupenay, S

English

PubMed

S Toupenay

M de la Dure

N Razanamihaja

A Berdal

M-L Boy-Lef�vre

Springer - Publisher Connector

POSTER PRESENTATION Open Access
Follow-up care of rare diseases in odontology:
a public health issue
S Toupenay1,2*, M de la Dure1,3, N Razanamihaja1,2, A Berdal2,3, M-L Boy-Lefèvre1,2
From 5th International Conference on Ectodermal Dysplasia (ED2012)
Erlangen, Germany. 1-3 June 2012
This study aims at providing new data relating to rare
diseases with or without bucco-dental component. A
national investigation based on a questionnaire has been
carried out in France and a clinical study has been com-
pleted with the patients consulting the national centre
of rare malformations of the face and the buccal cavity,
in particular oligodontia.
The results revealed a difficult and complex course of
care for all the patients suffering from rare diseases. The
oral health quality is not linked to the severity of the
bucco-dental component. An unfavorable medico-eco-
nomic impact has been noted in the treatment of
numeric anomalies of teeth, including oligodontia. Pro-
posals have been raised to improve the follow-up care of
these patients on the basis of the current evolution of
health policy.
Author details
1Department of Public Health, Dental Faculty, University of Paris Diderot,
France. 2Reference Centre of Rare Diseases of Face and Buccal Cavity, Paris
Hospitals, France. 3INSERM Cordeliers Biomedical Research Centre, Paris,
France.
Published: 25 May 2012
doi:10.1186/1746-160X-8-S1-P11
Cite this article as: Toupenay et al.: Follow-up care of rare diseases in
odontology: a public health issue. Head & Face Medicine 2012 8(Suppl 1):
P11.
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1Department of Public Health, Dental Faculty, University of Paris Diderot,
France
Full list of author information is available at the end of the article
Toupenay et al. Head & Face Medicine 2012, 8(Suppl 1):P11
http://www.head-face-med.com/content/8/S1/P11
HEAD & FACE MEDICINE
© 2012 Toupenay et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative
Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and
reproduction in any medium, provided the original work is properly cited.


Follow-up care of rare diseases in odontology: a public health issue

Toupenay S

de la Dure M

Razanamihaja N

Berdal A

Boy-Lefèvre M-L

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Head & Face Medicine

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Follow-up care of rare diseases in odontology: a public health issue

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