Buckley, Christopher D.

Falahee, Marie

Filer, Andrew

Hanson, Helen

Isaacs, John D.

McInnes, Iain B.

Pollock, Judith

Pratt, Arthur G.

Raza, Karim

Siebert, Stefan

Musculoskeletal Care

English

The Arthritis Research UK Rheumatoid Arthritis Pathogenesis Centre of Excellence (RACE) is a partnership between researchers at Newcastle University, the University of Birmingham and the University of Glasgow. Established in 2013, it is funded for 5 years, with a grant of £2.5 million from Arthritis Research UK and a further £4 million pledged by the three universities.  Rheumatoid arthritis (RA) is a chronic inflammatory autoimmune condition that affects the joints and internal organs. Synovial inflammation can cause cartilage and bone damage with resultant joint destruction and associated disability. RACE aims to identify biological mechanisms involved in the initiation of RA and its progression to a chronic disease, and to identify novel therapeutic targets for control and cure.  It has long been recognized that patients' experience complements researchers' skills (Hewlett et al., 2006). At the outset of the RACE project, it was agreed that patient engagement and involvement was crucial to facilitate the translation of research undertaken by the centre into public benefit. The present paper reports on a conference held at the University of Birmingham in January 2016 to bring together patient and public involvement (PPI) representatives from each hub, and to provide patients' and carers' perspectives on the following questions:  What should research charities focus their spending on?  How can people with RA influence the research agenda?  What are the best ways for scientists to feed back to patients, relatives and carers about research findings

Pollock, J

Raza, K

Pratt, AG

Hanson, H

Siebert, S

Filer, A

Isaacs, JD

McInnes, IB

Falahee, M

ORA - Oxford University Research Archive

Patient and researcher perspectives on facilitating patient and public involvement in rheumatology research

Judith Pollock

Karim Raza

Arthur G. Pratt

Helen Hanson

Stefan Siebert

Andrew Filer

John D. Isaacs

Christopher D. Buckley

Iain B. McInnes

Marie Falahee

Crossref

Isaacs, John

Buckley, Christopher

McInnes, Iain B

University of Birmingham Research Portal

The Arthritis Research UK Rheumatoid Arthritis Pathogenesis Centre of Excellence (RACE) is a partnership between researchers at Newcastle University, the University of Birmingham and the University of Glasgow. Established in 2013, it is funded for 5 years, with a grant of £2.5 million from Arthritis Research UK and a further £4 million pledged by the three universities.

Rheumatoid arthritis (RA) is a chronic inflammatory autoimmune condition that affects the joints and internal organs. Synovial inflammation can cause cartilage and bone damage with resultant joint destruction and associated disability. RACE aims to identify biological mechanisms involved in the initiation of RA and its progression to a chronic disease, and to identify novel therapeutic targets for control and cure.

It has long been recognized that patients' experience complements researchers' skills (Hewlett et al., 2006). At the outset of the RACE project, it was agreed that patient engagement and involvement was crucial to facilitate the translation of research undertaken by the centre into public benefit. The present paper reports on a conference held at the University of Birmingham in January 2016 to bring together patient and public involvement (PPI) representatives from each hub, and to provide patients' and carers' perspectives on the following questions:

What should research charities focus their spending on?

How can people with RA influence the research agenda?

What are the best ways for scientists to feed back to patients, relatives and carers about research findings?</p

Buckley, CD

Oxford University Research Archive (ORA)

Enlighten

Oxford University Research Archive

Enlighten: Publications

https://ora.ox.ac.uk/objects/uuid:f8dea70b-82a7-44ac-987c-fa2e04c494bf/files/m6fe86d81933bcfe9254907a532103f96

Patient and researcher perspectives on facilitating patient and public involvement in rheumatology research

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ORA - Oxford University Research Archive

Crossref

University of Birmingham Research Portal

Oxford University Research Archive (ORA)

Enlighten

Oxford University Research Archive

Enlighten: Publications

University of Birmingham Research Portal

University of Birmingham Research Portal