Patients with idiopathic trigeminal neuralgia (TN) were categorised into 3 subtypes (n 5 225). Group 1 (n 5 155, 68.9%) had TN
without concomitant pain, group 2 (n532, 14.2%) had TN with intermittent concomitant pain, and group 3 (n539, 16.9%) had TN
with autonomic symptoms. We tested 2 hypotheses: (1) that different pain profiles would be associated with the different groups; (2)
that the severe pain associated with TN would impact negatively on activities of daily living and thereby result in disability as defined
by the World Health Organisation. A different pain profile was found across the groups. We obtained unequivocal evidence that TN
causes disability with up to 45% of patients being absent from usual daily activities 15 days or more in the past 6 months. On the
Hospital Anxiety and Depression Scale, 35.7% patients had mild-to-severe depression and over 50% were anxious. The Pain
Catastrophizing Scale showed that 78% of patients had considerable negative thoughts with scores.20 and a mean score of 36.4.
Prior to referral, only 54% had been prescribed carbamazepine while opioids had been prescribed in 14.6% of the patients. Prior to
referral, over 80% had already been to 1 specialist centre which had not provided appropriate management. Patients with TN report
varied characteristics but all result in some degree of psychosocial disability especially before adequate therapy is attained
