Campos, Luísa

Palha, Filipa

English

Repositório Institucional da Universidade Católica Portuguesa

29/10/12 1 The Portuguese “United to Help” movement to combat stigma and discrimination against mental illness WORLD CONGRESS OF THE WORLD FEDERATION FOR MENTAL HEALTH 2009  Athens, 2 – 6 September 2009  Filipa Palha, Luísa Campos   WHY ?   THE PORTUGUESE REALITY THE NUMBERS  “The 3rd National [Portuguese] Health Survey suggested that the prevalence of psychiatric disorders in  the general population is around 30%, with approximately 12%  being severe mental disorders […]”    (Directorate General of Health, 2004)   “Stigmatization and discrimination are among the key obstacles to care”.     Around the world people do not seek, obtain or follow treatment because of fear, deficient resources or lack of information. They are commonly victimized for their illness and become targets for human rights abuses and discrimination. Stigmatization and discrimination are key factors that impede people from obtaining the help they need.”   (World Health Organization, FIFTY-FIFTH WORLD HEALTH ASSEMBLY A55/18, Provisional agenda item 13.13 11 April 2002) 29/10/12 2 INTERVENTION  TRAINING   EDUCATION   RESEARCH  SERVICES  EVALUATION  Masters in Psychosocial Rehabilitation  Educational material  Conferences / workshops  ANTI-STIGMA CAMPAIGNS/  PROGRAMMES Non-governmental organization (NGO) founded on  Mental Health Day 2006.  ANTI STIGMA CAMPAIGN   A Song for Mental Health UPA - United to Help Movement AIMS •  Increase the awareness and knowledge of the nature of mental disorders and treatment options;  •  Contribute to the gradual replacement of old stereotypes with accurate information in order to reduce discrimination, and improve public attitudes towards those who have or have had a mental disorder, and their families;  •  Help demystify mental illness, and reduce the feelings of hopelessness of those living with it, and their families.  •  Promote preventive behaviours, by highlighting the need to seek treatment at early stages. PHASE 1 October-December 2007   PHASE 2 January-October 2008 PHASE 1  SPECIFIC AIMS •  TO REACH THE GENERAL PUBLIC WITH A THEME NOT TALKED ABOUT - VISABILITY; •  TO START TALKING ABOUT MENTAL DISORDERS;  •  TO START QUESTIONING ABOUT PRE-EXISTING IDEAS/PREJUDICES;  •  TO HELP PEOPLE  SEEKING CARE/HELP 29/10/12 3 STRATEGY •  “VERBALIZE” INNER THOUGHTS REGARDING 3 MAJOR MENTAL DISORDERS – DEPRESSION, PANIC DISORDER AND SCHIZOPHRENIA   (3 FILMS + 3 ILLUSTRATIONS FOR TV + PRESS + OUTDOORS); •  MENTION SOME  SYMPTOMS/ FEELINGS RELATED TO THESE DISORDERS AS POSSIBLE CUES PEOPLE SHOULD NOT IGNORE;  •  STRESS THE IDEA THAT MENTAL DISORDERS ARE A REALITY FOR WHICH THERE IS TREATMENT;   SCHIZOPHRENIA Are you there Johny… I am speaking with you, don’t  pretend you are not listening… Come on…you can’t get anything right for a change…You are  weak, an incompetent… Estás a ouvir Jonhy… everyone is laughing at you… 30 years and what did you achieved… nothing you are a burden for everyone…  SCHIZOPHRENIA IS A DISORDER FOR WHICH THERE IS TREATMENT… SPEAK TO YOUR DOCTOR  DEPRESSION 29/10/12 4 PANIC DISORDER PHASE 2  UPA – United to help Stand up against stigma and discrimination towards mental disorders PHASE 2 January – November 2008 •  In a positive and constructive way, UPA seeks to help people move one step forward in the acceptance and understanding of mental disorders. It is addressed both for those who do not accept having a problem, who delay seeking help, and who suffer because of a mental disorder, and for everyone who deals badly with this reality;  •  UPA aims to bring hope and promote change SPECIFIC AIMS •  TO PRESENT STIGMA ATTITUDES TOWARDS MENTAL DISORDERS THROUGH MUSIC AND THE USE OF ROLE MODELS;  •  TO DEAL WITH A “DIFFICULT” THEME IN A POSITIVE WAY; •  TO FIND A WAY OF LEDING PEOPLE TO A SITE WHERE THEY CAN FIND INFORMATION REGARDING MENTAL DISORDERS;  •  TO “MOTIVATE” PEOPLE TO GIVE THE FIRST STEP TOWARDS SEEKING HELP; 29/10/12 5 STRATEGY •  FROM JANUARY TO OCTOBER 2008, EVERY MONTH:  - A MUSIC IS RELEASED REGARDING ONE OF THE IDENTIFIED THEMES;    - A FILM IS MADE FOR TV;  - AN ILLUSTRATION IS  MADE FOR MUPIS AND PRESS;  - THE WEBSITE HAS ALL THE MATERIAL AVAILABLE AND PEOPLE CAN DOWNLOAD THE MUSIC STRATEGY •  10 THEMES – 10 MUSICS  •  20 BANDS •  10 FILMES •  10 ILLUSTRATIONS •  1 CD / DVD + RADIO PROGRAMMES + TV PROGRAMMES + CONFERENCES, ETC IDENTIFICATION OF THEMES •  The identification of themes / key messages of the campaign resulted from a collaborative work group integrating institutions representing of health consumers, family members, NGOs, and care providers:  THEMES The first theme represents the project’s general goal: 1 – DISCRIMINATING / INTEGRATING, The idea is to pass from denial (of diseases, of accepting being ill) and ignorance to accepting and informing, meaning:  2 - DENYING / ACCEPTING  Here we start entering the disease itself, stressing the idea that mental diseases are as any other true disease and not a choice of the individual.  3- SEPARATING / UNITING Upon introducing mental health as a part of general health, mind and body considered as a whole, and after having accepted the disease as a disease and not as the choice of an attitude, we start dealing with different aspects of experiencing the disease and how other people perceive it. Hence: 4- FEAR / UNDERSTANDING   5- GUILT / TOLERANCE 6- SHAME / ACCEPTANCE   7- DEPENDENCE / AUTONOMY We then pass to the most direct consequence therefrom: 8- OFFEND / RESPECT We finish with the two last themes that lead to a more positive perspective (HOPE) and the cycle is closed by returning to the initial integration theme (FRATERNITY) 9- DESPAIR / HOPE 10- LONELINESS / FRATERNITY THEME MUSICIANS January 2008 DISCRIMINATING / INTEGRATING Xutos e Pontapés / Oioai February 2008 DENYING / ACCEPTING Rodrigo Leão / J.P Simões March 2008 SEPARATING / UNITING Camané / Dead Combo April 2008 GUILT / TOLERANCE Sérgio Godinho / Xana May 2008 DEPENDENCE / AUTONOMY Cool Hipnoise / Tiago Bettencourt June July 2008 FEAR / UNDERSTANDING Mesa / Rui Reininho August 2008 OFFEND / RESPECT Paulo Gonzo / Balla September 2008 SHAME / ACCEPTANCE José Mário Branco / Mão Morta October 2008 DESPAIR / HOPE Mariza / Boss AC November 2008 LONELINESS / FRATERNITY Jorge Palma / Clã JANUARY 29/10/12 6 Música “Pertencer” de XUTOS E PONTAPÉS + OIOAI  FEBRUARY  Música “Ele é que não” de RODRIGO LEÃO + JP SIMÕES MARCH  29/10/12 7 Música “O Vendaval” de CAMANÉ + DEAD COMBO APRIL Música “O Rei vai nu” de SÉRGIO GODINHO + XANA MAY Música “Ouve bem” de Cool Hipnoise + Tiago Bettencourt JULY 29/10/12 8 Música “BI.polar” de MESA + RUI REININHO AUGUST Música “VOA” de PAULO GONZO + BALLA www.encontrarse.pt 29/10/12 9 OUTCOMES •  90.435  visits to the site;  •  895 donations to download the musics;  •  Participation in 12 radio programmes;  •  Participation in 6 TV programmes;  •  Since December 2007 – 120 billboards distributed by Porto, V. Nova de Gaia, Aveiro, Faro, Évora, Viseu, Leiria)  69 % of population + 15 years of years have been exposed to the campaign at least once 2007  2007     DEZ OCTOBER TV RTP 41 Times RTP2 96 Times SIC 591 Times RTPN 100 Times  PORTO CANAL Lack of data SIC NOTÍCIAS 113 Times SIC RADICAL 108 Times SIC MULHER 110Times PRESS DIÁRIO NOTÍCIAS 12 Times JORNAL NOTÍCIAS 9 Times REVISTAS 24 HORAS 47 Times LUX 2 Times DESTAK 13 Times PÚBLICO ÍPSILON 7 Times OUTDOORS MCO TV (metro) 1 every 10  minutes TV TOTAL COVER FOR TARGET GROUP  +15 Y* 68,52% Visit of Patt Franciosi, WFMH OUTRAS INICIATIVAS QUE APOIARAM A CAMPANHA 29/10/12 10 CD/DVD NEW PROJECTS SPONSORS    Major Sponsor Minor Sponsor Other support 

The Portuguese “United to Help” movement to combat stigma and discrimination against mental illness

https://repositorio.ucp.pt/bitstream/10400.14/12959/1/The%20Portuguese%20%e2%80%9cUnited%20to%20Help%e2%80%9d%20movement%20to%20combat%20stigma.pdf

The Portuguese “United to Help” movement to combat stigma and discrimination against mental illness

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Repositório Institucional da Universidade Católica Portuguesa