Campos, Luísa

Palha, Filipa

English

Repositório Institucional da Universidade Católica Portuguesa

29/10/12 1 United to help movement (UPA) in Portugal: To combat mental illness stigma and promote mental health  Filipa Palha & Luísa Campos    Refocus on Recovery 2012 conference 5-7 March 2012  London, UK  researchintorecovery.com         Refocus on Recovery 2012 Conference  London, 5-7 March 2012    Outline •  PORTUGUESE REALITY REGARDING MENTAL HEALTH  •  BRIEF PRESENTATION OF ENCONTRAR+SE  •  The UPA MOVEMENT     - BROADER INITIATIVES     - SPECIFIC THEMES / TARGET GROUPS  •  STRATEGIES       THE PORTUGUESE REALITY Law nº 2118, 3rd April • The Portuguese Mental Health Law of 1963, very much influenced by the Mental Health Act promulgated by Kennedy in the USA, proposed a community-based model…  1963 	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	   	  	   	  	   	  	  	  	  2012 49 YEARS Portuguese Mental Health: Political Issues  2008 Resolution of the Assembly of the Republic n.º 5/2008 Aproves the National Mental Health Plan for the period 2007- 2016. 6 years 29/10/12 2 2004 	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	   	  	  	  	  “In the Portuguese National Health Plan for 2004-2010, it was assumed that : “there are people at risk of being hospitalized due to the lack of alternatives to institutionalization” MENTAL HEALTH CONSIDERED A PRIORITY 2010 WORST OUTCOMES IN MENTAL HEALTH. SITUATION EVEN WORSE! 1º Mental Health Budget “ fundamental to implements the proposed reforms. Without it, it will be very difficult to achieve significant changes”  The 2010 country summary refers a large gap between the number of people affected with mental disorders and those receiving treatment:   q Estimated prevalence of people with mental disorders - 1,557,054 (16.07%); q People receiving treatment in psychiatric mental health services belonging to the public and social sectors - 168.389 (1.7%).  Prevalence of mental disorders / access to treatment Mental Health Services q Public Psychiatric hospitals ...........................................................6 q Local Mental Health Services with impatient unit ………………… 26 q Local Mental Health Services without impatient unit …………….. 4 q Regional Departments of Child and Adolescents Psychiatry ….... 3 q Services/Units of Child and Adolescents Psychiatry ……………... 21 q Impatient Units Social Sector ………………………………………. 10  “Currently there are no formal community mental health services in Portugal” (Portugal Country Summary, 2010) 29/10/12 3 Anti-stigma initiatives “....initiatives to combat mental illness stigma”.       Brief presentation ENCONTRAR+SE’S PHILOSOPHY Non-governmental organization (NGO) founded on  Mental Health Day 2006, recognised as being of public interest.   Develop programs related to the four components of “The Great Push for Mental Health” initiative proposed by the WFMH (John Copeland, MD, Past President, WFMH /Chairman, WFMH Great Push for Mental Health)   UNITY,  VISIBILITY,  RIGHTS, and  RECOVERY RECOVERY   TRAINING   EDUCATION   RESEARCH  SERVICES  EVALUATION  Masters in Psychosocial Rehabilitation  Educational material  Conferences / workshops  ANTI-STIGMA CAMPAIGNS/  PROGRAMMES “Centro de Atendimento  Integrado” Learning Center ADVOCACY /LOBBYING  RIGHTS     29/10/12 4 Anti-stigma initiatives in Portugal ? Initiatives to promote Mental Health in Portugal ? WHERE TO START?  VISIBILITY – GENERAL POPULATION  FOCUS – SPECIFIC ISSUES / TARGET GROUPS  VISIBILITY ANTI STIGMA CAMPAIGN   A Song for Mental Health UPA - United to Help Movement 29/10/12 5 AIMS •  Increase the awareness and knowledge of the nature of mental disorders and treatment options;  •  Contribute to the gradual replacement of old stereotypes with accurate information in order to reduce discrimination, and improve public attitudes towards those who have or have had a mental disorder, and their families;  •  Help demystify mental illness, and reduce the feelings of hopelessness of those living with it, and their families.  •  Promote preventive behaviours, by highlighting the need to seek treatment at early stages. PHASE 1 October-December 2007   PHASE 2 January-October 2008 PHASE 1  SPECIFIC AIMS •  TO REACH THE GENERAL PUBLIC WITH A THEME NOT TALKED ABOUT - VISABILITY; •  TO START TALKING ABOUT MENTAL DISORDERS;  •  TO START QUESTIONING ABOUT PRE-EXISTING IDEAS/PREJUDICES;  •  TO HELP PEOPLE  SEEKING CARE/HELP 29/10/12 6 STRATEGY •  “VERBALIZE” INNER THOUGHTS REGARDING 3 MAJOR MENTAL DISORDERS – DEPRESSION, PANIC DISORDER AND SCHIZOPHRENIA   (3 FILMS + 3 ILLUSTRATIONS FOR TV + PRESS + OUTDOORS); •  MENTION SOME  SYMPTOMS/ FEELINGS RELATED TO THESE DISORDERS AS POSSIBLE CUES PEOPLE SHOULD NOT IGNORE;  •  STRESS THE IDEA THAT MENTAL DISORDERS ARE A REALITY FOR WHICH THERE IS TREATMENT;   SCHIZOPHRENIA Are you there Johny… I am speaking with you, don’t  pretend you are not listening… Come on…you can’t get anything right for a change…You are  weak, an incompetent… Estás a ouvir Jonhy… everyone is laughing at you… 30 years and what did you achieved… nothing you are a burden for everyone…  SCHIZOPHRENIA IS A DISORDER FOR WHICH THERE IS TREATMENT… SPEAK TO YOUR DOCTOR 29/10/12 7  DEPRESSION PANIC DISORDER 29/10/12 8 PHASE 2  UPA – United to help Stand up against stigma and discrimination towards mental disorders PHASE 2 January – November 2008 •  In a positive and constructive way, UPA seeks to help people move one step forward in the acceptance and understanding of mental disorders. It is addressed both for those who do not accept having a problem, who delay seeking help, and who suffer because of a mental disorder, and for everyone who deals badly with this reality;  •  UPA aims to bring hope and promote change SPECIFIC AIMS •  TO PRESENT STIGMA ATTITUDES TOWARDS MENTAL DISORDERS THROUGH MUSIC AND THE USE OF ROLE MODELS;  •  TO DEAL WITH A “DIFFICULT” THEME IN A POSITIVE WAY; •  TO FIND A WAY OF LEDING PEOPLE TO A SITE WHERE THEY CAN FIND INFORMATION REGARDING MENTAL DISORDERS;  •  TO “MOTIVATE” PEOPLE TO GIVE THE FIRST STEP TOWARDS SEEKING HELP; 29/10/12 9 STRATEGY •  FROM JANUARY TO OCTOBER 2008, EVERY MONTH:  - A MUSIC IS RELEASED REGARDING ONE OF THE IDENTIFIED THEMES;    - A FILM IS MADE FOR TV;  - AN ILLUSTRATION IS  MADE FOR MUPIS AND PRESS;  - THE WEBSITE HAS ALL THE MATERIAL AVAILABLE AND PEOPLE CAN DOWNLOAD THE MUSIC STRATEGY •  10 THEMES – 10 MUSICS  •  20 BANDS •  10 FILMES •  10 ILLUSTRATIONS •  1 CD / DVD + RADIO PROGRAMMES + TV PROGRAMMES + CONFERENCES, ETC IDENTIFICATION OF THEMES •  The identification of themes / key messages of the campaign resulted from a collaborative work group integrating institutions representing of health consumers, family members, NGOs, and care providers:  THEMES The first theme represents the project’s general goal: 1 – DISCRIMINATING / INTEGRATING, The idea is to pass from denial (of diseases, of accepting being ill) and ignorance to accepting and informing, meaning:  2 - DENYING / ACCEPTING  Here we start entering the disease itself, stressing the idea that mental diseases are as any other true disease and not a choice of the individual.  3- SEPARATING / UNITING Upon introducing mental health as a part of general health, mind and body considered as a whole, and after having accepted the disease as a disease and not as the choice of an attitude, we start dealing with different aspects of experiencing the disease and how other people perceive it. Hence: 4- FEAR / UNDERSTANDING   5- GUILT / TOLERANCE 6- SHAME / ACCEPTANCE   7- DEPENDENCE / AUTONOMY We then pass to the most direct consequence therefrom: 8- OFFEND / RESPECT We finish with the two last themes that lead to a more positive perspective (HOPE) and the cycle is closed by returning to the initial integration theme (FRATERNITY) 9- DESPAIR / HOPE 10- LONELINESS / FRATERNITY 29/10/12 10 CAMPAIGN MATERIALS Music “Pertencer” -  XUTOS E PONTAPÉS + OIOAI  29/10/12 11 29/10/12 12 OUTCOMES •  90.435  visits to the site;  •  895 donations to download the musics;  •  Participation in 12 radio programmes;  •  Participation in 6 TV programmes;  •  Since December 2007 – 120 billboards distributed by Porto, V. Nova de Gaia, Aveiro, Faro, Évora, Viseu, Leiria)  69 % of population + 15 years of years have been exposed to the campaign at least once 2007  2007     DEZ OCTOBER TV RTP 41 Times RTP2 96 Times SIC 591 Times RTPN 100 Times  PORTO CANAL Lack of data SIC NOTÍCIAS 113 Times SIC RADICAL 108 Times SIC MULHER 110Times PRESS DIÁRIO NOTÍCIAS 12 Times JORNAL NOTÍCIAS 9 Times REVISTAS 24 HORAS 47 Times LUX 2 Times DESTAK 13 Times PÚBLICO ÍPSILON 7 Times OUTDOORS MCO TV (metro) 1 every 10  minutes TV TOTAL COVER FOR TARGET GROUP  +15 Y* 68,52% 29/10/12 13 Visit of Patt Franciosi, WFMH OUTRAS INICIATIVAS QUE APOIARAM A CAMPANHA 29/10/12 14 CD / DVD OTHER INITIATIVES •  CHARITY DINNER / PARTY •  UPA INFORMS (WEBSITE) •  UPA MARCH    FOCUS  -  SPECIFIC AREAS / TARGET-GROUPS  -  PROMOTION OF MENTAL HEALTH  -  1 – PREVENTION / COMBAT STIGMA - YOUTH   UPA MAKES THE DIFFERENCE   UPA TEACHERS   FINDING SPACE TO MENTAL HEALTH -  2 – INTERVENTION – COMMUNITY-BASED SERVICES (ADULTS)  MEDIA - National Mental Health Journalism Prize   INTERVENTION  - COMMUNITY-BASED SERVICES (ADULTS)   29/10/12 15 STRATEGIES  SOCIAL MARKETING + ATTRACTIVE IMAGE +  INOVATIVE + COHERENCE + ADAPTED TO DIFFERENT TARGETS USE OF ROLE MODELS  RESEARCH AND EVALUATION  IMAGE TREATING IN A NICE / “CUTE” WAY A DIFFICULT ISSUE 29/10/12 16 COHERENCE SPONSORS / COLLABORATORS         THANK YOU 

United to help movement (UPA) in Portugal To combat mental illness stigma and promote mental health

https://repositorio.ucp.pt/bitstream/10400.14/12998/1/United%20to%20help%20movement%20%28UPA%29%20in%20Portugal%20To%20combat%20mental%20illness%20stigma%20and%20promote%20mental%20health.pdf

United to help movement (UPA) in Portugal To combat mental illness stigma and promote mental health

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Repositório Institucional da Universidade Católica Portuguesa