This thesis was submitted for the degree of Doctor of Philosophy and awarded by Brunel University.For the astract, please see the PDF fil

Kantaris, Xenya

English

Brunel University Research Archive

(ed.). Adherence to Treatment in Medical Conditions, chapter 1, Harwood Academic Publishers.

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A brief review of the pathophysiology, associated pain and psychosocial issues in sickle cell disease.

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A comparison of the outcome of cognitive behaviour therapy and hydroxyurea in sickle cell disease.

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A critical appraisal of the quality-of-life measurements.

A crosscultural study of psychosocial aspects of sickle cell disease

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A general theory for perceptual indicators of family life quality.

A health related quality of life questionnaire for multiple sclerosis patients.

A health-related quality of life instrument for patients evaluated for epilepsy surgery.

A model of equivalence in the cultural adaptation of HRQoL instruments: the universalist approach.

A Monte Carlo examination of MTMM model with planned incomplete data structures.

A multi-center study in order to further define the molecular basis of beta thalassaemia in

A multidimensional view of quality of life in frail elders‟ In:

A Multidisciplinary Concept Analysis of Quality of Life.

A national register for surveillance of inherited disorders: beta thalassaemia in the United Kingdom.

A new short individual quality of life measures (SEIQoL-DW_: application in a cohort of individual with HIV/AIDS.

A phase 3 study of deferasirox (ICL670), a once-daily oral iron chelator, in patients with beta-thalassaemia.

A psychosocial needs assessment of patients with homozygous beta-thalassaemia.

A Review of Health Related Quality of Life Measures Used in End-Stage Renal Disease.

A series of cases of splenomegaly in children with anaemia and peculiar bone changes.

A Technique for the Measurement of Attitudes.

A two way view of gender bias in medicine.

A user’s guide to the General Health Questionnaire.

Accuracy of selfreported disability in patients with Parkinsonism.

Acromegaly Quality of life questionnaire (AcroQol). Health and Quality of Life Outcomes,

Adherence issues in the medical management of asthma.

Adherence of adult cystic fibrosis patients with airway clearance and exercise regimens.

Adult outpatients with depression: Worse quality of life than in other chronic medical diseases in Argentina.

Aging and quality of life.

Agreement between proxy reports and self-reports of quality of life in epilepsy patients.

Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ):

An analysis of alternative approaches to evaluation. Educational Evaluation and Policy Analysis.

An evaluation of a brief health status measure in elderly veterans.

An Explanatory Model of Health Promotion and Quality of Life in Chronic Disabling Conditions.

An international survey of patients with thalassaemia major and their views about sustaining life-long desferrioxamine use.

An inventory for measuring depression.

and The Clinical Significance Consensus Meeting Group

and the World Health Organisation Quality of Life Group (WHOQOL Group)

Any better? Outcome measures in medical audit.

Appendix 6: A children‟s behaviour questionnaire for completion by parents. Education, health and behaviour,

Applied Factor Analysis.

Approaches to the interpretation of quality-of-life scales.

Are factor analytical techniques used appropriately in the validation of health status questionnaires? A systematic review on the quality of factor analysis of the SF-36.

Assessing coping strategies: A theoretically based approach.

Assessing quality of life in dementia: Preliminary psychometric testing of the Quality of Life Assessment Schedule (QOLAS).

Assessing quality of life in individuals with hereditary blood coagulation disorders.

Assessing quality of life: moral implications for clinical practice.

assessment for epilepsy surgery: the impact of measuring health-related Quality of life.

Assessment of function in routine clinical practice: description of the COOP Chart method and preliminary findings.

Assessment of outcomes in health intervention.

Assessment of psychosocial functioning o patients with sickle cell disease.

Assessment of quality of life outcomes.

Associates of health status in patients with systemic lupus erythematous.

Association (BMA)

Assumptions underlying evaluation models.

Attitudes can be measured.

Available at:

Available at: http://www.scotland.gov.uk/Publications/2006/01/13110743/11. (Accessed 16th

Barriers to effective mental health services for African Americans.

Basic Content Analysis. 2nd ed.,

Beyond Internal Consistency Reliability: Rationale and User's Guide for Multitrait Scaling Analysis Program on the microcomputer.

Body image in cystic fibrosisdevelopment of a brief diagnostic scale.

Brief report: Depressive symptoms and quality of life in adolescents with b-thalassaemia.

Burden of iron chelation therapy significantly impacts adherence to treatment in patients with iron overload. Presented at the European Haematological Association,

Can we identify the poorest quality of life? Assessing the importance of quality of life using the WHOQOL100.

Canonical variate analysis and related techniques.

Causes and problems of no response or poor response to drugs.

Chronic disease and its impact.

Chronic illness, disability and mental and social well-being: Findings of the Ontario child health study.

Class and committees in a Norwegian island parish.

Clinical appropriateness: a key factor in outcome measure selection. The 36-item Short Form Health Survey in multiple sclerosis.

Clinical impact versus factor analysis for quality of life questionnaire construction.

Clinical interpretation of health related quality of life data‟

Clinical manifestations and therapy of transfusional haemosiderosis.

Clinical trials of multiple sclerosis‟ In:

Clinical, genetic and psychosocial aspects of the β-thalassaemias. MD thesis,

Coefficient alpha and the internal structure of tests.

Combined therapy with deferiprone and Desferrioxamine.

Comparing professional and patient perspectives on quality of life.

Comparison of an ordinal and a continuous outcome measure of muscle soreness.

Comparison of methods for the scoring and statistical analysis of SF-36® health profiles and summary measures: summary of results from the Medical Outcomes Study. Med Care 33(Suppl.4):AS264-AS279.

Comparison of oral iron chelator L1 and desferrioxamine in iron-loaded patients.

Comparison of three generic questionnaires measuring quality of life in adolescents and adults with cystic fibrosis: the 36-Item short form health survey, the quality of life profile for chronic diseases, and the questions of life satisfaction.

Comprehensive Quality of Life Scale‟ (Intellectual Disability, Melbourne: Psychology Research Centre‟, In:

Concepts of quality of life in mental healthcare‟ In:

Conceptualisation and measurement of quality of life as an outcome variable for healthcare intervention and research.

Construct validity in psychological tests.

Content Analysis: An Introduction to Its Methodology. 2nd edition,

Content comparison of health-related quality of life (HRQOL) instruments based on the international classification of functioning, disability and health (ICF).

Coping and social support as determinants if quality of life in HIV/AIDS. Aids care,

Correlates of psychosocial adjustment among young adults with cystic fibrosis.

Cost and Health Related Quality of Life Consequences of Multiple Sclerosis.

Criteria for assessing patient based outcome measures for use in clinical trials.

Deferiprone versus deferoxamine in patients with thalassaemia major: a randomized clinical trial.

Depression in Parkinson‟s disease: a quantitative and qualitative analysis.

The development and validation of a patient based health outcome measure for adults with beta thalassaemia major (BTM)

The development and validation of a patient based health outcome measure for adults with beta thalassaemia major (BTM)

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