Genetic screening as a technique of government: The case of neonatal screening for cystic fibrosis in France

Abstract

International audienceThe biomedicalization process and the rise of genetics that have occurred in the last decades involve political issues concerning subjects in biomedicine who are in a position to act and make choices. My work examines these issues through a study of the process by which neonatal screening for the genetic disease of cystic fibrosis was set up in France. Making use of the Foucauldian notion of government, which implies power relations among entities recognized as subjects of action, I examine how different agents (or groups) came to form either governing or governable entities within this health policy, and by what means government in this area is exercised. The study positions relations between governors and the governed in the dynamic specific to them, showing that screening for cystic fibrosis is to a large degree a political technique for governing self and others based on a biomedical technique. Two types of subjects (a professional association and a patients’ association) are seen to be constituted in different ways and endowed with more or less extensive power. More generally, the study raises the question of the form of the political, through the example of genetic screening